JoannePearson North West
AmandaBurt West Midlands
patrickbailly North East
rbailie Northern Ireland
comley Wales
mattcaffyn Wales
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Know your gene. Join the Registry.
The DMD Registry has been set up as a tool for research groups to find patients with specific gene variations and other clinical criteria for new Duchenne clinical trials. In 2008 the MDEX team have used the Registry to make contact with patients for the UK exon skipping trial.