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March

  1. Seeds of Hope 2012
    • Nationwide
    • 1 March 2012 - 1 August 2012

    Seeds of Hope is back bigger and better than the last 2 years we are looking for schools, youth group or even streets across the UK to get their packs and get in the garden and get growing. Which area will have the most sunflowers this year?

May

  1. China Trek
    • China
    • 10 May 2012 - 19 May 2012

    For a country with the biggest population in the world China remains largely untouched by the west. It is a beautiful country steeped in tradition, history and mythology. For those with a passion for culture and a sense of adventure – China leaves an indelible mark on all who go there... Come trek with us… Minimum sponsorship level £3,000

  1. Charity Ball
    • Ewood Park, Blackburn
    • 19 May 2012

    Join us at Ewood Park, the home of Blackburn Rovers Football Club, for what promises to be a fantastic evening. The night will begin at 7.30pm with the bar closing at 1am. * Champagne Reception * Three Course Meal by Northcote at the Rovers * Charity Auction & Raffle Tickets are £40 For more information, contact Diana- 07827 355 270 or diana@actionduchenne.org

  1. Bupa Great Manchester Run
    • Manchester City Centre
    • 20 May 2012

    Run for Action Duchenne in Manchester City Centre at "the nation’s favourite 10k running event." This year will be he tenth staging of the Bupa Great Manchester Run which is live on BBC television. For runners of all abilities Entry fee £37 To run and raise vital funds for Action Duchenne, please contact Diana 07827 355 270 or diana@actionduchenne.org

    http://www.greatrun.org/events/event.aspx?id=4
  1. 2012 Edinburgh Marathon
    • Edinburgh - Scotland
    • 26 May 2012 - 27 May 2012

    Action Duchenne has seen great support over the years with participation in the ever growing Edinburgh Marathon. The event has now incorporated a variety of runs for all levels and the waiting is over as entries for the 2012 Edinburgh Marathon Festival are now open. The 2012 Edinburgh Marathon Festival will incorporate several races over the marathon running festival weekend consisting of the following: Saturday 26th May 2012 will stage the EMF 10km, 5km, 2 Junior Races for runners aged 6-10 and 11-14, an International Breakfast Run, Mascot Race, a 5k wheelchair and 5k hand-bike race. Sunday 27th May 2012 the marathon, half marathon and team relay will take place. Over 30,000 entrants are expected to take part across the Edinburgh Marathon Festival weekend and here is your chance to take part and help Action Duchenne. We have allocated places which are already being snapped up. If you are interested in taking part in any of the events over this weekend then please get in touch with me via email: dean@actionduchenne.org thank you. Remember you can help support those taking part by pledging a £5 donation via text, simply ACTION EDMAR to 70555 Texts cost £5 plus network charge. Action Duchenne receives 100% of your donation. Please obtain bill payers permission. Charity No 1101971

    http://www.edinburgh-marathon.com/
  1. Spitfire Bounce
    • Slade Green Community Centre, DA8 2HS
    • 26 May 2012

    Come and dance the night away to Swing and Jive. 7.30-12.00 £7 on the door. call Kate for more information on 0208 556 9955

June

  1. Manchester to Liverpool Cycle Ride
    • North East - Manchester - Liverpool
    • 3 June 2012

    After hearing about a work colleague supporting Action Duchenne and helping to help raise funds due to her nephew living with Duchenne, Joanne Normanton and Rebecca Hutton from Hartlepool decided they wanted to get involved as well. Both Joanne and Rebecca have secured their places to take part in the Manchester to Liverpool cycle ride on 3rd June 2012. The 37 mile ride starts from the heart of the new Salford Quays and follows the Trans Pennine Cycle route as it threads its way through the Cheshire countryside and hugs the historic Manchester Ship Canal. Please help support Joanne and Rebecca by either donating on their Stop Wasting Page and leaving a message of support or pledge a £3, £5 or £10 donation by texting ACTION CYCLE £(amount) to 70555. Thank you and good luck to Joanne and Rebecca!

    http://www.actionduchenne.org/stopwasting/usr4089413388/event/746/cycle-manchester---liverpool
  1. Scottish Lobby
    • Holyrood, Edinburgh, Committee Room 1, 13.15 - 14.15
    • 6 June 2012

    Agenda Introduction - Jim Eadie MSP Dr Keith Foster - Royal Holloway John Miller (grandfather of boy with Duchenne) Mark Chapman (living with Duchenne) Last year’s event in Scotland brought together a diverse group of people who highlighted their experiences of Duchenne, treatment and standards of care. This year, it would be great if you could join us and tell your story. Please join us for the Scottish lobby in the Scottish Parliament. We will look at meeting at everyone from 11am at My Dynamic Earth Cafe. For more information please contact andrew@actionduchenne.org and to register your interest please follow the link.

    http://www.actionduchenne.org/scottishlobby12
  1. W2W Cycle Ride
    • North East covering Wanly Island to Weardale and finishing at Sunderland
    • 8 June 2012 - 10 June 2012

    2012 has a different route and a different name, however the determination of father Phil Carr remains the same as he takes to his bike again to help raise funds and awareness for Action Duchenne. This year will see Phil take to the road and cover 63 miles on the first day followed by a further 103 miles on the second day! Inspired by the pioneering Sea to Sea Cycle Route (C2C), the W2W route passes through a variety of wonderful countryside to the south. It stretches between Walney Island, just outside Barrow-in-Furness on Cumbria’s Irish Sea coast and Wearmouth in Sunderland along the North Sea coast. Please show your support for Phil by leaving a message of support and donation on his page, or pledge a donation by texting ACTION W2W to 70555. Texts cost £5 plus network charge. Action Duchenne receives 100% of your donation. Please obtain bill payers permission. Charity No 1101971. Thank you and good luck Phil!

    http://www.actionduchenne.org/stopwasting/usr7706751696/event/698/w2w-cycle-ride
  1. Westminster Lobby
    • Westminster, London
    • 13 June 2012

    Please join us for the Westminster Lobby Event. Wednesday, 13th June, Meet at Central Hall 9.30am. 9.30am - 3.00pm Central Hall, Downing St and Portcullis House On the 13th June 2012 Action Duchenne will be holding its annual Westminster Lobby event. This is our chance to deliver our message about the need for: - Allocated funding for and the co-ordination of research into a cure or treatment for Duchenne - Integrated Healthcare for Duchenne patients, access to all, based on the Internationally agreed Standards of Care for Duchenne - National Commissioning of more specialist Centres of Excellence for treatment for Duchenne patients Last year over two hundred people attended and the day was a great success. This year, a march will be followed by the handing in of our petition to number 10. For more information please contact andrew@actionduchenne.org and to register your interest please follow the link.

    http://www.actionduchenne.org/westminster12
  1. North East Zip Slide
    • The Tyne Bridge in Newcastle
    • 16 June 2012

    Do you fancy zipping across the waters of the Tyne while helping to raise funds and awareness for Action Duchenne? Here is your chance to zip wire from the Newcastle side of the bridge and travel diagonally across the River Tyne for 230m before finishing at HMS Calliope on the Gateshead side. The event is very popular with places already sold out for the 17th June, so if you want to have a go on Saturday 16th June 2012 please follow the link to register or get in touch to secure your place.

    http://www.zipslidesuk.co.uk/events/tyne-bridge/11
  1. Pre-Lobby Round Table Meeting 5pm - 7pm
    • Malone Lodge Hotel, 60 Eglantine Avenue Belfast, County Antrim BT9 6DY
    • 17 June 2012

    Prior to the Action Duchenne lobby we are inviting families and friends to meet at the Malone Lodge Hotel between 5pm - 7:00pm. The meeting will give everyone the chance to discuss the day ahead and how we can get the message we are looking to deliver to Stormont across. It will also be an opportunity to meet new families in your local regions. Please remember to register your details for the lobby event being held on Monday 18th June by following the link below.

    http://www.actionduchenne.org/northernireland12
  1. Northern Ireland Lobby
    • Long Gallery, Stormont
    • 18 June 2012

    Monday, 18th June, Meet at Stormont Cafe at 12.30pm 13.00 - 14.30 Long Gallery On the 18th June 2012 Action Duchenne will be holding its annual Northern Ireland Lobby event. This is our chance to deliver our message about the need for: - Allocated funding for and the co-ordination of research into a cure or treatment for Duchenne - Integrated Healthcare for Duchenne patients, access to all, based on the Internationally agreed Standards of Care for Duchenne - National Commissioning of more specialist Centres of Excellence for treatment for Duchenne patients During last year’s event in Northern Ireland MLA’s from all parties spoke to families about their experiences. It also gave an opportunity for families to talk about standards of care and research updates with specialists. Please be aware that there is also a round table meeting the day before, on the 17th of June at Malone's Lodge Hotel from 5pm til 7pm. To get involved, contact Andy at andy@actionduchenne.org or register your interest by following the link below.

    http://www.actionduchenne.org/northernireland12
  1. Climb A Ben for Duchenne
    • Scotland
    • 23 June 2012 - 24 June 2012

    2012 will see the Climb A Ben for Duchenne event tackle 2 peaks in the Beinn a'Ghlo range. The climb will see those taking on the challenge cover around 10 miles with the highest peak (Braigh Coire Chruinn-bhalgain) being 3,510ft (1,070metres). Are you feeling up to the challenge of climbing to these dizzy heights and helping raise awareness and funds for Action Duchenne? If you are then please get in touch to register to secure your place. If you don't have a head for heights then please visit Andrew's justgiving page and leave a kind donation with a message of support. Thank you.

    http://www.justgiving.com/teamaghlo

July

  1. Mizen Head to Malin Head 420 mile Cycle Ride
    • Ireland
    • 7 July 2012 - 10 July 2012

    After hearing about a local lad who was diagnosed with Duchenne, 10 volunteers have taken on the massive challenge of cycling from Mizen head to Malin head to support Action Duchenne. The 420 mile route will begin on the 7th July, finishing the 10th July at Malin head. The team of 10 are determined to help raise as much awareness and funds possible and hope to raise in the region of £10,000. Please consider leaving a kind donation and message of support for the team on their Stop Wasting page. Good luck to the team and thank you!

    http://www.actionduchenne.org/stopwasting/usr4170773500/event/810/mizen-head-to-malin-head-cycle
  1. Welsh Lobby
    • Welsh Assembly, Conference Room 21, 12:30-1:30pm
    • 11 July 2012

    Meet at 12 at the Welsh Assembly. Agenda: Vaughn Gething AM - Sponsor Lesley Griffins (Health Minister) (Invited) Becky Kinge (Mother of boy living with Duchenne) Rachel Salmon - Family Care Advisor John Burke (Father of boy living with Duchenne) Louise Hartley (The Children's Centre, University Hospital of Wales) Please join us for the Welsh Lobby Event. For more information please contact eilidh@actionduchenne.org

  1. Tough Mudder
    • Drumlanrig Castle and Country Estate, Thornhill, Dumfriesshire, Scotland
    • 14 July 2012 - 15 July 2012

    Tough Mudder events are hardcore 10-12 mile obstacle courses designed by the Special Forces to test your all around strength, stamina, mental grit, and camaraderie. As the leading company in the booming obstacle course industry, Tough Mudder has already challenged half a million inspiring participants worldwide. But Tough Mudder is more than an event, it’s a way of thinking. By running Tough Mudder, you’ll unlock a true sense of accomplishment, have a great time, and discover a camaraderie with your fellow participants that’s experienced all too rarely these days. You can participate and raise money for Action Duchenne!

    http://toughmudder.co.uk/events/scotland/
  1. Lost Ark Motorcycle Club Tour
    • Northern Ireland - Wales
    • 14 July 2012 - 21 July 2012

    BBC Northern Ireland TV announcer, Roy Willighan, is supporting Action Duchenne along with his Riders of the Lost Ark Motorcycle Club from July 14th -21st. The group hope to raise £1,000 and lots of awareness for Action Duchenne on the 700 mile round trip. Further details of the event can be seen following the link. Thank you to everyone involved and good luck with the ride!

    http://www.actionduchenne.org/stopwasting/usr2168513428

August

  1. Devil O' The Highlands
    • Perthshire - Highlands - Scotland
    • 4 August 2012

    Are you or someone you know an ultra running enthusiast and fancy a challenge? If so then the Devil O' The Highlands 43 mile foot race could just be what you are looking for. With a start time of 6am with a 12 hour time limit this race is ideal for anyone who wishes to up their race distance from a marathon and experience real Ultra-distance running in the company of fellow runners with views of some of Scotlands most beautiful scenery. If you or someone you know feel up to the challenge then please get in touch with me at dean@actionduchenne.org

    http://www.devilothehighlandsfootrace.co.uk/

September

  1. Scottish Zip Slide
    • Xscape Braehead in Glasgow
    • 8 September 2012

    Do you fancy zipping across buildings and car park like in the movies while helping to raise funds and awareness for Action Duchenne? Here is your chance to zip wire at the Xscape building at Braehead, Glasgow. The launch point is 40m high on the outside of the building, followed by a 250m zip across the car park. The complex has plenty of entertainment and restaurants to make it a fun filled day out. If you want to have a go on Saturday 8th September 2012 please follow the link to register or get in touch.

    http://www.zipslidesuk.co.uk/events/xscape-braehead/15
  1. London to Brighton
    • London to Brighton
    • 8 September 2012

    Cycle from London to Brighton cycling along quiet roads and tracks that take us through the beautiful countryside of Surrey and Sussex. 46 miles with breaks and lunch. Entrance fee £20. For more information contact Kate 0208 556 9955 or kate@actionduchenne.org use the below link to sign up and get in touch for tshirt and sponsorship form.

    http://www.redspokes.co.uk/forms/booking_form_cart.php
  1. Pedal Scotland
    • Scotland
    • 9 September 2012

    Stuart Giles, father to Dylan who has Duchenne, together with a team of work colleagues and friends completed the 51 mile cycle ride from Glasgow to Edinburgh on the 11th September 2011 helping to raise fantastic funds and awareness for Action Duchenne. Continuing with the dedication of helping to make a difference Stuart will be taking part in the Pedal for Scotland event again on 9th September 2012. Some supporters from the 2011 ride have already agreed to take part again in the 2012 event. If you would like to get involved and be part of the 2012 team helping to support Action Duchenne then please get in touch.

    http://www.actionduchenne.org/stopwasting/usr4729882942/event/683/pedal-for-scotland-2012
  1. Great Wall of China Trek
    • North East - China
    • 13 September 2012 - 22 September 2012

    Gemma Hanna has a nephew, Luke, who has Duchenne and since his diagnosis has been supporting Action Duchenne with raising funds and awareness with various fundraising activities. Gemma along with her work colleague, Clair Hebbron, have decided to take on the challenge of completing the Great Wall of China Trek to help raise further funds and awareness for Action Duchenne. Please help support Gemma and Clair by either donating on Gemma's Stop Wasting Page and leaving a message of support or pledge a £3, £5 or £10 donation by texting ACTION CHINA £(amount) to 70555. Thank you and good luck to Gemma and Clair!

    http://www.actionduchenne.org/stopwasting/usr9950282791/event/712/great-wall-of-china-trek
  1. Bupa Great North Run 2012
    • Gateshead Newcastle
    • 16 September 2012

    Action Duchenne has secured 25 places for the 2012 Bupa Great North Run. The world's largest half marathon will see participants covering 13.1 miles between Newcastle upon Tyne and South Shields. The half marathon grows year upon year with over 50,000 people taking part. Action Duchenne has seen fantastic support over the years with families and supporters getting involved helping to raise awareness and funds for the charity. If you, or someone you know, would like to take part then please follow the link below to register your interest. Thank you.

    http://www.actionduchenne.org/gnr
  1. Father and Son Iron Man 2012
    • Pembrokeshire
    • 16 September 2012

    See Father Chris and son Jonathan Spowart take part in the Iron Man Wales. The start of the race is at North Beach in the seaside village of Tenby. After exiting the waters of Carmarthen Bay after the 3.8km swim, the athletes will take on the challenge of the 180km bike course through the fascinating countryside of Pembrokeshire Coast National Park, passing numerous castles and iconic landmarks. The medieval town walls and picturesque beach front provide an impressive backdrop for the concluding marathon through Tenby.

    http://www.justgiving.com/JonathanSpowart
  1. Casino Royale NI Evening
    • Hilton Hotel - Belfast
    • 28 September 2012

    The Association of Credit Professionals have been helping to support Action Duchenne in a number of ways over the last 12 months from staff taking part in dress down days to highlighting the work of the charity by way of road shows. To help continue raising the profile and funds for Action Duchenne there will be a Bond Themed Charity Casino Evening for the Credit Industry in NI, held at the Hilton Hotel, in Belfast on Friday 28th September 2012 - 7pm to late. Further details can be seen on their Stop Wasting Page. If you fancy a fun filled evening and can come along then please get in touch.

    http://www.actionduchenne.org/stopwasting/YourACP/event/811/casino-royale--ni

October

  1. Vietnam Cycle
    • Vietnam Cycle
    • 25 October 2012 - 5 November 2012

    If you have ever wanted to do an exhilarating challenge for charity here is your chance. Action Duchenne are looking for adventurous volunteers to cycle in Vietnam taking in some of the worlds most breathtaking landscapes. Minimum sponsorship level £3,500

November

  1. Action Duchenne International Conference 2012
    • Holiday Inn London
    • 9 November 2012 - 10 November 2012

    More news of the Action Duchenne conference to come. Please put this date in your diary

  1. Tough Mudder
    • Cholmondeley Estates, Cholmondeley, Malpas, Cheshire
    • 17 November 2012 - 18 November 2012

    Tough Mudder events are hardcore 10-12 mile obstacle courses designed by the Special Forces to test your all around strength, stamina, mental grit, and camaraderie. As the leading company in the booming obstacle course industry, Tough Mudder has already challenged half a million inspiring participants worldwide. But Tough Mudder is more than an event, it’s a way of thinking. By running Tough Mudder, you’ll unlock a true sense of accomplishment, have a great time, and discover a camaraderie with your fellow participants that’s experienced all too rarely these days. You can participate and raise money for Action Duchenne!

    http://toughmudder.co.uk/
  1. Costa Rica Terk
    • Costa Rica
    • 22 November 2012 - 2 December 2012

    The beauty of Costa Rica is staggering, from dense tropical rainforest to rich flora and fauna to forest clad mountains to sparkling blue seas this trek has it all! For those looking for a rewarding challenge through remote and rarely visited regions this trek will not fail to impress. Come trek with us... Minimum sponsorship level £3,500

March

  1. Vintage Fashion Show
    • Ponteland Memorial Hall, Darras Road, Ponteland, Newcastle Upon Tyne
    • 21 March 2013

    On Thursday 21st March there will be a vintage fashion held at the Ponteland Memorial Hall, Darras Road, Ponteland, Newcastle Upon Tyne. The evening will start at 7:30pm and consist of 2 sessions each lasting 45 minutes. There will also be a raffle held on the evening with proceeds from the raffle and ticket sales given to Action Duchenne. The evening promises to be a great night out with ticket costs at £10 each. If you are interested in coming along on the evening then please get in touch.