Searching for a cure, Improving lives


The Charity is governed by 3 sets of legal organisations:  the Charity Commissions for England; the Scottish Charity Commission and, as we are a company limited by guarantee, Companies House, this means that we have to prepare an annual report for presentation to all three governing bodies.  You can find the Articles of Association – what the Charity is set up to do – here.  The rules are clear in content and timing.  This means that we have to have our Annual General meeting  within 6-months of the end of our last financial year (31 Oct) and usually results in our AGM being held in May.  This section sets out each year’s set of documentation for our annual returns.  If you can any comments, or wish to know any more about our governance, then please contact the CEO by clicking here.


AGM at International Conference 11/12 November 2016

Form of Proxy

AGM Agenda

Conference Agenda


Annual Returns 2016

Agenda for the AGM

Financial Report 2016


Annual Returns 2015  

Agenda for the AGM

Financial Returns 2015

Minutes of the AGM


Annual Returns 2014  

Agenda for the AGM

Financial Report 2014

Minutes of the AGM

National Meeting Slides – Tracey Davies, Diana Ribeiro


Annual Returns 2013  

Agenda for the AGM

Financial Report

Minutes of the AGM


Annual Returns 2012   

Financial Report


Annual Returns 2011  

Financial Report


Annual Returns 2010  

Financial Report




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Summit to Extend Ongoing PhaseOut DMD Clinical Trial of Ezutromid in Patients with DMD

March 27th, 2017

  Introduction from Michelle Avery (Summit Therapeutics): Today, we’ve announced that we intend to proceed

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Amazing London Marathon Dinner at Jamie’s Italian!

February 7th, 2017

  On Saturday 3 February Andrew Parkinson and Andrew Pearson, two of our London Marathon

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Positive Preclinical Research on the Edasalonexent (CAT-1004) Program

January 6th, 2017

  Catabasis announced the publication of preclinical data on the edasalonexent program, a potential disease-modifying

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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