Searching for a cure, Improving lives

Governance

The Charity is governed by 3 sets of legal organisations:  the Charity Commissions for England; the Scottish Charity Commission and, as we are a company limited by guarantee, Companies House, this means that we have to prepare an annual report for presentation to all three governing bodies.  You can find the Articles of Association – what the Charity is set up to do – here.  The rules are clear in content and timing.  This means that we have to have our Annual General meeting  within 6-months of the end of our last financial year (31 Oct) and usually results in our AGM being held in May.  This section sets out each year’s set of documentation for our annual returns.  If you can any comments, or wish to know any more about our governance, then please contact the CEO by clicking here.

 

AGM at International Conference 11/12 November 2016

Form of Proxy

AGM Agenda

Conference Agenda

 

Annual Returns 2017

Financial Returns 2016

 

Annual Returns 2016

Agenda for the AGM

Financial Report 2016

 

Annual Returns 2015  

Agenda for the AGM

Financial Returns 2015

Minutes of the AGM

 

Annual Returns 2014  

Agenda for the AGM

Financial Report 2014

Minutes of the AGM

National Meeting Slides – Tracey Davies, Diana Ribeiro

 

Annual Returns 2013  

Agenda for the AGM

Financial Report

Minutes of the AGM

 

Annual Returns 2012   

Financial Report

 

Annual Returns 2011  

Financial Report

 

Annual Returns 2010  

Financial Report

 

 

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Events

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Registry

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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First draft of agenda announced – Action Duchenne International Conference

June 28th, 2017

We are extremely excited to announce the first draft of the agenda for the Action

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Sarepta announces its partner, Genethon, published new micro-dystrophin gene therapy data

July 28th, 2017

Data show for the first time a systemic therapeutic effect in DMD dogs using a

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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