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Learn More

Welcome to the new Action Duchenne website. The site includes many favourites from the previous site but also many new exciting features allowing you to interact and learn more. By registering you will have access to the Duchenne community including access to your own Stop Wasting page allowing you to blog, add pictures, put your events up and talk to others. This page gives you a personal URL. The new site includes Duchennepedia which is an extensive knowledge base for everything Duchenne, you will also have access to the message boards.

Getting Started

Click on register at the top right hand side of the home page. Fill in registration details and then log in. This will take you to your own dashboard.

You will see a number of things on your dashboard:

Duchennepedia allows you to contribute and access a wealth of information provided by all registered users of Action Duchenne site. Contribute by updating and create new articles.

Also on your dashboard you will see the document library, mail your MP and the forum similar to the sections on the old site but all placed in your own dashboard for easy access.

On the right hand side of the dashboard you will see Stop Wasting section. This section will allow you to add information about yourself, set up your own URL for your events, add events, find friends, communicate with local families, people living with Duchenne, supporters and fundraisers and private message other users.

The site is a user friendly community we hope you will enjoy, allow you to get the most out of fundraising and answer all your questions.

If you would like any help or advice please contact your regional advocate who will be happy to talk through the site with you and help you set up your Stop Wasting page.

Esther Derber, North West, Yorkshire and Humberside - esther@actionduchenne.org 01706 693 399 or 07768620721

Dean Widd, Scotland, North East and Ireland - dean@actionduchenne.org 07780955695

Kate Angus London, Eastern, East and West Midlands 

Iain Clarke, South West, South East and Wales  - Iain@actionduchenne.org 07825256944

It’s time to stop wasting! Set up your page today.