Searching for a cure, Improving lives

Advice and Guides for Adults with DMD

 

 

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DMD Pathfinders is a user-led charity (reg. no. 1155884, Scottish Charity No. SC045202) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.

 

DMD Pathfinders have produced a range of guides and advice for adults living with Duchenne which you can find by following this link. DMD Pathfinders are planning on producing more guides in the near future.

 

The guides include:

 

Ventilation in DMD: Frequently Asked Questions

 

Touch, Tap, Swipe (Choosing and Using Touch Phones and Tablets)

 

Life and Breath – Emergency Procedures for Power Failures

 

 

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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First draft of agenda announced – Action Duchenne International Conference

June 28th, 2017

We are extremely excited to announce the first draft of the agenda for the Action

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Sarepta announces its partner, Genethon, published new micro-dystrophin gene therapy data

July 28th, 2017

Data show for the first time a systemic therapeutic effect in DMD dogs using a

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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