Searching for a cure, Improving lives

Advice and Guides for Adults with DMD





DMD Pathfinders is a user-led charity (reg. no. 1155884, Scottish Charity No. SC045202) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.


DMD Pathfinders have produced a range of guides and advice for adults living with Duchenne which you can find by following this link. DMD Pathfinders are planning on producing more guides in the near future.


The guides include:


Ventilation in DMD: Frequently Asked Questions


Touch, Tap, Swipe (Choosing and Using Touch Phones and Tablets)


Life and Breath – Emergency Procedures for Power Failures




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Join the DMD registry for access to clinical trials


Summit presents data from Phase 1 clinical programme of lead utrophin modulator, ezutromid

June 22nd, 2017

Summit Therapeutics has today announced the presentation of clinical data from two Phase 1 clinical trials

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What Raxone being given approval through the EAMS scheme means for the Duchenne community

June 22nd, 2017

  Over a number of years we have worked closely with Santhera Pharmaceuticals and other

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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