DMD Pathfinders is a user-led charity (reg. no. 1155884, Scottish Charity No. SC045202) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.
DMD Pathfinders have produced a range of guides and advice for adults living with Duchenne which you can find by following this link. DMD Pathfinders are planning on producing more guides in the near future.
The guides include:
Ventilation in DMD: Frequently Asked Questions
Touch, Tap, Swipe (Choosing and Using Touch Phones and Tablets)
Life and Breath – Emergency Procedures for Power Failures