Searching for a cure, Improving lives

Advice and Guides for Adults with DMD





DMD Pathfinders is a user-led charity (reg. no. 1155884, Scottish Charity No. SC045202) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.


DMD Pathfinders have produced a range of guides and advice for adults living with Duchenne which you can find by following this link. DMD Pathfinders are planning on producing more guides in the near future.


The guides include:


Ventilation in DMD: Frequently Asked Questions


Touch, Tap, Swipe (Choosing and Using Touch Phones and Tablets)


Life and Breath – Emergency Procedures for Power Failures




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Join the DMD registry for access to clinical trials


Summit to Extend Ongoing PhaseOut DMD Clinical Trial of Ezutromid in Patients with DMD

March 27th, 2017

  Introduction from Michelle Avery (Summit Therapeutics): Today, we’ve announced that we intend to proceed

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Amazing London Marathon Dinner at Jamie’s Italian!

February 7th, 2017

  On Saturday 3 February Andrew Parkinson and Andrew Pearson, two of our London Marathon

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Positive Preclinical Research on the Edasalonexent (CAT-1004) Program

January 6th, 2017

  Catabasis announced the publication of preclinical data on the edasalonexent program, a potential disease-modifying

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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