Searching for a cure, Improving lives

Advice and Guides for Adults with DMD

 

 

dmd-pathfinders-logo501

 

DMD Pathfinders is a user-led charity (reg. no. 1155884, Scottish Charity No. SC045202) which promotes choice and control and quality of life for teenagers and adults with Duchenne Muscular Dystrophy in the UK. It campaigns for improved standards of health and social care and provides advice, guidance and support to teenagers and adults with Duchenne Muscular Dystrophy on issues such as independent living, housing, employment and welfare rights.

 

DMD Pathfinders have produced a range of guides and advice for adults living with Duchenne which you can find by following this link. DMD Pathfinders are planning on producing more guides in the near future.

 

The guides include:

 

Ventilation in DMD: Frequently Asked Questions

 

Touch, Tap, Swipe (Choosing and Using Touch Phones and Tablets)

 

Life and Breath – Emergency Procedures for Power Failures

 

 

Donate

Support Action Duchenne with a monthly or one off donation

Donate

Events

View our events

View All Events

Registry

Join the DMD registry for access to clinical trials

Register

Action Duchenne launches new Research Strategy for Duchenne muscular dystrophy

November 17th, 2017

  Action Duchenne, a leading UK-wide patient and parent-led organisation for Duchenne Muscular Dystrophy, is

Tell me more

Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

Tell me more

FDA new approach would reduce number of patients treated with placebo

December 11th, 2017

The U.S. Food and Drug Administration (FDA) has published its recommendation for a new approach

Tell me more

Results announced from survey ‘Juggling care and daily life’

December 11th, 2017

The 17th October 2017 was an important date for the rare disease community.  The highlights of the

Tell me more

Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

wordpress counter

Stay informed with regular updates from Action Duchenne