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December 2007 MDEX Newsletter
Welcome to the December MDEX Newsletter. This monthly Newsletter is intended to update all within the MDEX consortium about news and activities in the past month.
Clinical Trial
The trial is now recruiting. The first patient who consented on October 26th had his IM injection of the trial drug AVI 4658 at St Mary’s Hospital on Tuesday 18th December 2007. All appears to have gone as anticipated. The BBC is following up this patient and filmed the IM injection. They will return to film the biopsy procedure and subsequently the effect that the injection had on dystrophin restoration in the biopsied muscle. There are currently no plans to broadcast.
Informed consent and assent to participate in this trial was obtained from a second patient on 6th December 2007. Pre assessment studies on this patient will be done in mid-January 2008.
Additional two patients have been contacted to discuss possible participation in the trial.
The Move
The move of the Neuromuscular Unit (NMU) from Imperial College London to the Institute of Child Health (ICH), UCL commenced on the 1st December 2007 with Francesco’s appointment with ICH.
Under TUPE regulations, a consultation period of 30 days for the inter university transfer of NMU staff commenced on 7th December. The first batch of NMU laboratory and associated staff will be transferred on the 1st of February 2008.
In agreement with the Head of the Division of Medicine at the Hammersmith Hospital, and the Dean at ICH, the current phase l/ll clinical trial will continue to be conducted under the auspices of Imperial College London.
Francesco’s new contact details are as follows:
Address: Dubowitz Neuromuscular Unit, 1st Floor Institute of Child Health, 30 Guildford Street, London WC1N 1EH.
Tel: 020 7905 2608 Fax: 020 7905 2832 email: f.muntoni@ich.ucl.ac.uk
Wish you a joyous and peaceful festive season
and the very best for 2008
Your comments would be welcome and any news that you would like to include in the January issue should be sent, latest a few days before the end of the month. k.ganeshaguru@imperial.ac.uk