In A Teams
Break the Walls Down!
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The Action Duchenne website aims to offer a unique forum for sharing information and ideas in the search for a cure and better medical care for Duchenne and Becker and will at all times attempt to ensure postings are accurate, scientifically peer reviewed and not offensive to individuals. Action Duchenne, however, cannot take responsibility for personal opinions, information and the content of links to other websites. It is essential that you always contact your clinician or GP before taking any course of medication, therapy or supplement.
Living on Death-Row
Living on Death-Row
The best way to describe Duchenne Muscular Dystrophy is just exactly that it’s like being innocent but living a death-row sentence – never knowing when time is up! It isn’t a very good feeling living in a disease where it’s not well known. But the time for being silent and keeping it swept under the carpet is over, I know its hard for parents and family to talk about Duchenne but remember its a disease with hope now, to kick this illness in the backside we really need to be shouting on the rooftops and getting big awareness out there!
Together in Action Duchenne we can defeat this condition, treatments are in the pipeline and I think a cure is on the horizon.
1 Comments
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- alice
- May 06th 2008
- 13:57pm
WOW, talk about direct and straight to the point, to describe living with duchenne in such a direct manner really made me stop and think and i experience it every day although not as such directly through my son harry who is 4 and is already wheelchair bound, your directness is concise and straight to thepoint,good for you!!!!! ALice