In Race Against Time
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Tell us the response you recieved from your MP
Action Duchenne needs to know which MP's MSP's AM's you have contacted and lobbied. Post comments to this blog giving us regular updates and news on your progress with your campaigning. It is essential that you build a good long term relationship with your MP's so that future lobbying events are successful and we can make the maximum impact for our demands for a cure and better medical care for Duchenne.
9 Comments
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- Carl Tilson
- April 23rd 2008
- 15:50pm
I have had a response from my MP Sir Gerald Kaufman this morning from the letter I sent when I registered for the lobby, writen on official house of commons paper, he says "Thank you for your letter. I am most grateful to you for writing to me about this extremely important issue and shall take it up with the Secretary of State for Health immediately. I shall be in touch with you again when I have his reply. I shall also be glad to attend the Lobby Day on 18th June and shall be grateful if, at your convenience, you could let me know the times and locations of the events. Best wishes. Yours sincerely, Gerald Kaufman
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Nick and I met with Lord Levy at the House of Lords. Will make sure we get a letter of support from him in time for the Lobby Day although I don't think that he will be appearing in person (haven't asked him yet).
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[IMG]http://i153.photobucket.com/albums/s207/mc69thriller/lobbymp2345.jpg[/IMG]
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Sorry thought it might work and show screenshot of my letter! Anyway my MP has replied again and he says "Thank you for your letter dated 24 April, for document you have kindly sent me, and for the information about the various events on Lobby Day. I shall do my best to meet any of my constituents in the Central Lobby between 12noon and 2pm. If you yourself are able to attend, please let me know. I shall of course be in touch with you as soon as I hear from the Secretary of State for Health. With many thanks for your kind personal remarks. Yours sincerely, Gerald
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Matthew, together with his Dad Garry, Tracy and myself went to Parliament in support of the MDC on 14th May. Matt's MP in Wales(Newport East), Jessica Morden, and my MP, Stephen Williams (Bristol West) took the time to meet with us, and Stephen has signed all the (5) EDMs currently tabled. As a PPS, Jessica can't sign the EDMs. Llanelli MP Nia Griffith opened a debate on Muscular Dystrophy, to which Jessica Morden contributed. See http://www.theyworkforyou.com/mp/jessica_morden/newport_east#hansard so now Matthew has the distinction of being in Hansard, and there aren't many 12 year olds who can say that!
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My MP Andrew Dismore has contacted me to say he has written to Dawn Primarolo on my behalf. Will let you know when I hear further.
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I received a reply from my MP, David Ruffley, on 16th May 2008. He has said he will take up the matter with Dawn Primarolo and get back to me when he has a response.
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We have received a positive response from our MP, Chris Mullin MP for Sunderland, on 02nd May 2008. We have met him on this matter on 6th June in his office in Sunderland following a response from Dawn Primarolo. He has asked for more information from us so he can write back to her. He has made arrangements to meet with us on the 18th June. Sunderland Football Club and its Chairman Niall Quinn have offered us his support and will donate some signed merchandise. Our local press, the Sunderland Echo, has already done 2 stories in favour of our campaign and will do a further one on our return from London.
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My MP Robert Syms of Poole Dorset said he would meet lobby group on the day and has passed a letter to Dawn Primarolo and a reply could take up to 2 months!