Searching for a cure, Improving lives

Campaign Volunteering



Action Duchenne are dedicated to improving the lives of everyone affected by Duchenne muscular dystrophy. Our campaigning strategy and successes are inextricably linked to the grass roots engagement and activism of the Duchenne community and the central role you play in driving our initiatives forwards.


If you’re interested in supporting the campaigns work of Action Duchenne, and standing shoulder to shoulder with us in fighting for the changes you want to see, please contact our Campaigns Officer, Stephen Hoffman, on 020 8556 9955 or via


Here’s just a few ways you can get involved!

  • Respond to guidance within our weekly newsletter providing you with platforms to get involved
  • Get in touch with your MP and push for their recognition and support of our campaigns
  • Contact your local press or radio and highlight key issues in your area
  • Maintain a vocal presence on social media to maximise pressure and awareness
  • Feedback on questionnaires, surveys, and public consultations to inform policy makers and shape legislation


Support Action Duchenne with a monthly or one off donation



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Join the DMD registry for access to clinical trials


Summit presents data from Phase 1 clinical programme of lead utrophin modulator, ezutromid

June 22nd, 2017

Summit Therapeutics has today announced the presentation of clinical data from two Phase 1 clinical trials

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What Raxone being given approval through the EAMS scheme means for the Duchenne community

June 22nd, 2017

  Over a number of years we have worked closely with Santhera Pharmaceuticals and other

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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