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Campaigns Hub

Welcome to Action Duchenne's Campaigns Hub, where you can find out how to get involved in fighting for the best care for those living with Duchenne and working towards a cure.

For all the latest campaign activity, check out our new -

Campaigns Blog (banners/CAMPAIGNS-BLOG.jpg)

 

 

 

Action Duchenne focuses it's campaigning on ensuring access to the full International Standards of Care, for everyone living with Duchenne. 

Our Lobby Document sets out our key political asks - 

- Allocated funding for and the co-ordination of research into a cure or treatment for Duchenne

- Integrated Healthcare for Duchenne patients, access to all, based on the Internationally agreed Standards of Care for Duchenne

- National Commissioning of more specialist Centres of Excellence for treatment for Duchenne patients

We campaign throughout the UK - this June/July holding lobbies at Stormont, Holyrood, Welsh Assembly and Westminster. We are also actively involved in All Party Parliamentary Groups and Cross Party Groups in national and devolved parliaments. 

Find out more about our parliamentary lobbies, national meetings, and how you can write to your MP.

For more information on any of this work, get in touch Andy at Andy@actionduchenne.org.

Call - 020 8556 9955