Posted on: July 25th, 2017 | 0 comments
The day explored the range of views of both adults living with Duchenne and their parents/carers/relatives, about such a device and its use. The focus group was used to gauge the impact this treatment could have on the lives of people affected by Duchenne.We are investigating a follow up webinar/teleconference to gather more feedback and a report of the findings will be published. Dr John Bourke’s slides are available here.
We would like to say a huge thank you to Dr John Bourke and Christine Baker for running the day and to all the participants for their very valuable contribution.