Searching for a cure, Improving lives

Cardiac Focus Group

Posted on: July 25th, 2017 | 0 comments

On Saturday, Action Duchenne in collaboration with the Newcastle Upon Tyne Hospitals NHS Trust, held focus groups on the use of implanted defibrillators (a special kind of implanted pacemaker) in treating people with Duchenne muscular dystrophy who have a heart weakness.

The day explored the range of views of both adults living with Duchenne and their parents/carers/relatives, about such a device and its use. The focus group was used to gauge the impact this treatment could have on the lives of people affected by Duchenne.We are investigating a follow up webinar/teleconference to gather more feedback and a report of the findings will be published. Dr John Bourke’s slides are available here.

We would like to say a huge thank you to Dr John Bourke and Christine Baker for running the day and to all the participants for their very valuable contribution.

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