Searching for a cure, Improving lives

Challenge Events


Whether you want to run, cycle, skydive, trek or jog, we have a challenge event to suit you. Check out our various UK and International events.

Whatever challenge you choose, or if you prefer to take on your own event, we at Action Duchenne will be there to support you all the way!

Every mile and hour you train, every £1 you raise will help find a cure for Duchenne muscular dystrophy through innovative research projects, while improving the lives of those affected by the condition.

If you are interested in getting involved in any challenge events for us then please contact our Events Fundraising Officer on 020 8556 9955 or via


Running pic for website test 2      Cycling website pic test one

Trek pic for website test      Skydive pic for website test

EDITORIAL USE ONLY (Left to right) Parallel London ambassadors, paraplegic television personality Sophie Morgan, model Kelly Knox, 12th Earl of Shaftesbury Nick Ashley-Cooper and Tony Heaton, Chief Executive at Shape, attend the launch of Parallel London, a not-for-profit event, which aims to encourage disabled people to be more active and more independent, at Queen Elizabeth Olympic Park in London. PRESS ASSOCIATION Photo. Picture date: Wednesday February 3, 2016. The major national event, which is backed by the Mayor of London, will take place on Sunday 4th September at Queen Elizabeth Olympic Park in London and will include multiple running or walking distances, ranging from 100m to 10km to suit different levels of ability. The emphasis will be on shared experience and celebrating the spirit of togetherness; everyone will be able to participate in the run at the same time and at their own pace. Photo credit should read: Matt Alexander/PA Wire



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Action Duchenne launches new Research Strategy for Duchenne muscular dystrophy

November 17th, 2017

  Action Duchenne, a leading UK-wide patient and parent-led organisation for Duchenne Muscular Dystrophy, is

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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FDA new approach would reduce number of patients treated with placebo

December 11th, 2017

The U.S. Food and Drug Administration (FDA) has published its recommendation for a new approach

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Results announced from survey ‘Juggling care and daily life’

December 11th, 2017

The 17th October 2017 was an important date for the rare disease community.  The highlights of the

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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