Searching for a cure, Improving lives

Contact us

Do you have questions about our work, research, fundraising or the registry?


Please contact us in the office on 020 8556 9955 

Or you can email us at


You can find us at:


Action Duchenne


41 West Street


E11 4LJ



Registered Charity Number 1101971 Scottish Charity No: SC043853


Text to donate code 

Text ACTD13£ (then the amount you wish to donate) to 70070 to donate to Action Duchenne and support our work.


Support Action Duchenne with a monthly or one off donation



View our events

View All Events


Join the DMD registry for access to clinical trials


Summit presents data from Phase 1 clinical programme of lead utrophin modulator, ezutromid

June 22nd, 2017

Summit Therapeutics has today announced the presentation of clinical data from two Phase 1 clinical trials

Tell me more

What Raxone being given approval through the EAMS scheme means for the Duchenne community

June 22nd, 2017

  Over a number of years we have worked closely with Santhera Pharmaceuticals and other

Tell me more

Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

wordpress counter

Stay informed with regular updates from Action Duchenne