Searching for a cure, Improving lives

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Do you have questions about our work, research, fundraising or the registry?


Please contact us in the office on 020 8556 9955 

Or you can email us at


You can find us at:


Action Duchenne


41 West Street


E11 4LJ



Registered Charity Number 1101971 Scottish Charity No: SC043852


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Join the DMD registry for access to clinical trials


Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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First draft of agenda announced – Action Duchenne International Conference

June 28th, 2017

We are extremely excited to announce the first draft of the agenda for the Action

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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