Searching for a cure, Improving lives

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Do you have questions about our work, research, fundraising or the registry?


Please contact us in the office on 020 8556 9955 

Or you can email us at


You can find us at:


Action Duchenne


41 West Street


E11 4LJ



Registered Charity Number 1101971 Scottish Charity No: SC043853


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View our events

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Join the DMD registry for access to clinical trials


Summit to Extend Ongoing PhaseOut DMD Clinical Trial of Ezutromid in Patients with DMD

March 27th, 2017

  Introduction from Michelle Avery (Summit Therapeutics): Today, we’ve announced that we intend to proceed

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Amazing London Marathon Dinner at Jamie’s Italian!

February 7th, 2017

  On Saturday 3 February Andrew Parkinson and Andrew Pearson, two of our London Marathon

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Positive Preclinical Research on the Edasalonexent (CAT-1004) Program

January 6th, 2017

  Catabasis announced the publication of preclinical data on the edasalonexent program, a potential disease-modifying

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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