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The Duchennepedia
The Duchennepedia is a resource created by all registered users of Action Duchenne. All submitted articles are moderated for accuracy, plain English and value of content by Action Duchenne Staff.
If you have valuable advice or information to pass onto the Duchenne community then write an article. If an article already exists then open it up and submit an edit or add new tags or resources. If you see an error then please edit the article yourself.
Action Duchene reserves the right to deny any entry that we deem to be inaccurate or offensive.
Action Duchenne cannot accept responsibility for the content of links to other websites.
It is essential that you always consult your Neuromuscular Consultant, GP or other health and educational professionals before taking medicines or changing interventions.
We hope that you enjoy our new encyclopedia of Duchenne information and resources. Let's not all have to reinvent the wheel - please get posting articles!
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Latest Articles
PhD Project - Research Decisions: Living with DMD
- 06 May 2012
- Last edit by 1-Newcastle-University
- Permanent link
Sarah Skyrme is a PhD student at Newcastle University, funded by the ESRC (Economic and Social R...
Tags: PhD project, interviews, Newcastle University.
Watch out for Gene Doping in the Olympic Games! What is IGF1?
- 06 May 2012
- Last edit by jonmoulton
- Permanent link
A recent review by Dr Karl BettelheimIn a recent copy of the popular science magazine, New Scien...
Tags: IGF1, Karl Bettelheim, olympic games, doping, duchenne, muscular dystrophy.
Personalised medcines - Dream or Reality?
- 27 Feb 2012
- Last edit by actionduchenne
- Permanent link
When my son Saul was diagnosed in 2000 I was surprised and angry that so little progress had bee...
Tags: personalised medicines, action duchenne, clinical trials, dmd registry.
Protandim to avoid oxidative stress?
- 08 Feb 2012
- Last edit by actionduchenne
- Permanent link
Protandim is used by some families in the UK. However there is no definitive data that shows it ...
Exon Skipping Explained
- 14 Sep 2011
- Last edit by actionduchenne
- Permanent link
This article by Annemeike Rus is a brilliant explanation of exon skipping.
Tags: exon skipping.
Physical Therapy
- 27 May 2011
- Last edit by emiolu2
- Permanent link
Physical therapy can help prevent deformities, improve movement, and keep muscles as flexible an...
Tags: Physical therapy, flexibility, exercises.
Update on the Therapeutic approaches to muscular dystrophy
- 10 May 2011
- Last edit by Andreina
- Permanent link
This is a summary of the article written by Aurelie Goyenvalle, Jane T Seto, Kay E Davies and Je...
Tags: exon skipping, gene therapy, Viral Vector, Dystrophin, rAAV, Antisense Oligonucleotide, PMO, PPMO, Duchenne, muscular dystrophy, Utrophin.
£2.5m research grant for Duchenne Muscular Dystrophy awarded to Oxford researchers
- 15 Apr 2011
- Last edit by Andreina
- Permanent link
Funding for pioneering research into gene therapy by Action Duchenne has led to further funds fo...
Tags: exon skipping, Duchenne, Duchenne muscular dystrophy, Dr Matthew Wood, Mike Gait, antisense oligonucleotides.
GSK2402968 Clinical Development Programme Update
- 15 Apr 2011
- Last edit by Andreina
- Permanent link
Forty-Eight Week Follow-Up Data from a Phase I/IIa Extension Study of PRO051/GSK2402968 in Subje...
Tags: Duchenne, DMD, GSK, Duchenne Muscular Dystrophy.
AAV-mediated gene therapy to the isolated limb in rhesus macaques.
- 18 Mar 2011
- Last edit by emiolu2
- Permanent link
Center for Gene Therapy, The Research Institute at Nationwide Children’s Hospital and Depa...
Tags: gene therapy, limb, muscle, adenoassociated viral AAV.
