-
Tony-Ackroyd North West
-
iangriff Wales
-
RyanD94 West Midlands
-
themartins Scotland
-
rbailie Northern Ireland
-
honeybun Wales
- Home
- Duchennepedia
The Duchennepedia
The Duchennepedia is a resource created by all registered users of Action Duchenne. All submitted articles are moderated for accuracy, plain English and value of content by Action Duchenne Staff.
If you have valuable advice or information to pass onto the Duchenne community then write an article. If an article already exists then open it up and submit an edit or add new tags or resources. If you see an error then please edit the article yourself.
Action Duchene reserves the right to deny any entry that we deem to be inaccurate or offensive.
Action Duchenne cannot accept responsibility for the content of links to other websites.
It is essential that you always consult your Neuromuscular Consultant, GP or other health and educational professionals before taking medicines or changing interventions.
We hope that you enjoy our new encyclopedia of Duchenne information and resources. Let's not all have to reinvent the wheel - please get posting articles!
Actions
Latest Articles
TREAT-NMD guide to 'Stem Cell Tourism'
- 29 Jan 2010
- Last edit by TREAT-Duchenne
- Permanent link
TREAT-NMD is aware that new scientific discoveries and innovations can lead to raised expectat...
Tags: stem cell tourism, stem cell, tourism, therapies, TREATNMD, hope, hype, neuromuscular disorders, Duchenne, muscular dystrophy, DMD, research.
Global excitement about potential treatments for Duchenne (Version in French)
- 12 Jan 2010
- Last edit by Pauline
- Permanent link
Dr. Matthew Wood rapports sur les développements récents dans l’exon skipping essais de la...
Tags: exon skipping, AVI, french.
Global excitement about potential treatments for Duchenne
- 18 Nov 2009
- Last edit by Andreina
- Permanent link
Dr. Matthew Wood reports on recent developments in exon skipping trials from the Oligonucleotide...
Tags: exon skipping, AVI.
Flavocoxid
- 04 Nov 2009
- Last edit by marks33
- Permanent link
A mixed flavonoid extract with anti-inflammatory, antioxidant and NF-kappaB inhibiting propertie...
Tags: flavocoxid, antioxidant, antiinflammatory.
Walks suitable for wheelchairs
- 28 Sep 2009
- Last edit by Pauline
- Permanent link
A husband and wife launched this website, to give information about walk routes and their suitab...
Tags: access, walks, holidays, wheelchair.
Blood test to detect DMD
- 26 Sep 2009
- Last edit by actionduchenne
- Permanent link
Researchers have developed a simple and affordable blood test that detects the most common form ...
Tags: Biopsy, Xchromosome, dystrophin, DMD mutations.
Progress in Gene Therapy for DMD: Slipping Full-Length Dystrophin Past the Immune System
- 15 Sep 2009
- Last edit by emiolu2
- Permanent link
The immune system is one of the biggest obstacles to gene therapy for Duchenne muscular dystroph...
Tags: adenovirus, gene therapy.
Treatment of Duchenne Muscular Dystrophy by Exon Skipping
- 07 Sep 2009
- Last edit by emiolu2
- Permanent link
PORTLAND, OR — January 21, 2009 — AVI BioPharma, Inc. (NASDAQ: AVII), a developer of R...
Tags: intramuscular IM injection, exonskipping, dystrophin.
Enabled by Design
- 05 Sep 2009
- Last edit by ActionTilson
- Permanent link
Enabled by DesignIt’s all about people powered products: Enabled by Design is a community ...
Creatine kinase
- 02 Sep 2009
- Last edit by emiolu2
- Permanent link
Creatine kinase, also known as phosphocreatine kinase or creatine phosphokinase, is an enzyme or...
Tags: Adenosine triphosphate.
