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The Duchennepedia

The Duchennepedia is a resource created by all registered users of Action Duchenne. All submitted articles are moderated for accuracy, plain English and value of content by Action Duchenne Staff.

If you have valuable advice or information to pass onto the Duchenne community then write an article. If an article already exists then open it up and submit an edit or add new tags or resources. If you see an error then please edit the article yourself.

Action Duchene reserves the right to deny any entry that we deem to be inaccurate or offensive.
Action Duchenne cannot accept responsibility for the content of links to other websites.

It is essential that you always consult your Neuromuscular Consultant, GP or other health and educational professionals before taking medicines or changing interventions.

We hope that you enjoy our new encyclopedia of Duchenne information and resources. Let's not all have to reinvent the wheel - please get posting articles!

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Latest Articles

Adapting your home to better suit

If you need improvements and adaptations to your home to help you continue to live independently...

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Promising new gene therapy for Duchenne Muscular Dystrophy

A potential new gene therapy for Duchenne Muscular Dystrophy (DMD) is now set to enter clinical ...

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New drug may prevent heart failure in DMD patients

Last updated 18 July 2005Those suffering from Duchenne muscular dystrophy (DMD) could receive a ...

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Recommendations of cardiac care From the AAP

In December, the Section on Cardiology and Cardiac Surgery of the American Academy of Pediatrics...

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MEDICAL ISSUES -PART 3

FRACTURES Like other children, boys with Duchenne may fracture (break) an arm or a leg. If this ...

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MEDICAL ISSUES- PART 2

THE USE OF STEROIDSOne option for maintaining and prolonging mobility is to consider the use of ...

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MEDICAL ISSUES- PART 1

For a child with Duchenne the primary school years are usually a time of significant change in t...

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Emergency care considerations

If you find yourselves needing to go to the hospital in an emergency situation, there are a rang...

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Considerations for surgery

There will be a variety of situations, both related to DMD (e.g. muscle biopsy, joint contractur...

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Psychosocial management -help with behaviour and learning

People with DMD may have an increased risk of psychosocial difficulties, such as problems with b...

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