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For help and advice on benefits and grants which you may be entitled to, you can send an enquiry to a few organisations.
Turn2us can help direct you.

There are organisations like The Family Fund, who can give an annual payment for items or things to benefit family life when there is a child with a disability. Family Fund will also consider applications for help towards the cost of travel and overnight accomodation for "A conference or study weekend relating to a specific condition, where there are activities for the children and social opportunities for the whole family. "