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DMD Registry

When talking about anything to do with Duchenne with regards to any age boy living with Duchenne. I really believe we can not stress enough how important it is to register on the DMD registry.

Medical trials are becoming an exciting reality. The DMD Registry created by Action Duchenne and the first of it’s kind is used to accelerate these trials.

Boys that are currently taking part in trials have been recruited via the registry. We need an extensive database of everyone living with Duchenne, if you do nothing else please register.

For further informatiom please contact Angela on 0208 556 9955 or your Regional Advocate.

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