making muscle wasting history

Standards of Care for Duchenne Muscular Dystrophy

• Last Edited: 5 May 2009
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By Kate BushbyAction Research, Professor of Neuromuscular GeneticsNewcastle University, UK The standard of care received by Duchenne patients in different countries and within countries can be som...

Tags: Standards of Care, TREATNMD, Care Considerations, Center of Disease Control, CDC, Multidisciplinary care, Kate Bushby.

Standards of Care - family friendly version

• Last Edited: 31 Mar 2010
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Research has shown conclusively that young people living with Duchenne that have access to multi disciplinary expert care are living longer and have an improved quality of life.Here for the first ...

Tags: standards of care, care, Treat NMD, centres of excellence, standards.

Summary of presentations from the Launch of the new Standards of Care for Duchenne Muscular Dystrophy at the Royal Society of Medicine

• Last Edited: 5 Jul 2010
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The launch event for the family friendly version of the Standards of Care for Duchenne Muscular Dystrophy took place on 2nd June at the Royal Society of Medicine in London. The event was attended...

Tags: care, standards of care.