making muscle wasting history

Events Calendar - Become a Fantastic Fundraiser and Campaigner

If you would like to become an Action Duchenne Fantastic Fundraiser then check out Events in your region or find an Event here in our Calendar. This is a diary of Action Duchenne Events and Conferences. If you would like to sign up and help Action Duchenne then please contact your local Regional Development Officer. Click here to see who your local Regional Development Officer is http://www.actionduchenne.org/about

January

1. Action Duchenne Ebay shop

   • Nationwide
   • 1 January 2012 - 1 January 2013

   Why not support Action Duchenne by selling unwanted Christmas gifts or just having a clear out why not pop the stuff on Ebay and sell them in aid of Action Duchenne, or why not have a look and pick up gifts. Any questions please contact Kate on 0208 556 9955 or kate@actionduchenne.org

February

1. Northern Ireland Parent's Roundtable

   • Malone Lodge Hotel & Apartments 60 Eglantine Avenue, Malone Road, Belfast, Ireland BT9 6DY
   • 5 February 2012

   16.30 - 19.00 Ahead of the next All Party Parliamentary Group Meeting at Stormont, we will be holding a families round table to discuss issues affecting families and young men living with Duchenne. If you're able to attend please let Eilidh know - 020 8556 9955 / eilidh@actionduchenne.org

1. All Party Group on Muscular Dystrophy - 'The Patient Perspective'

   • Room 29, Parliament Buildings, Stormont - Northern Ireland
   • 7 February 2012

   Further to the meeting held on the 5th December 2011 at Stormont, the second session of the All Party Group’s inquiry into access to specialist neuromuscular care will be held on Tuesday 7th February 2012, 12.30pm-2pm, Room 29, Parliament Buildings . Chaired by Conall McDevitt MLA, this inquiry is investigating current service provision for those with muscle-wasting disease in Northern Ireland. This session will focus on the patient perspective across Northern Ireland. This meeting will be attended by families from across Northern Ireland affected by Muscular Dystrophy and related neuromuscular conditions. Your support and input at the session would be greatly appreciated. Please get in touch with Jonathan Kingsley at the Muscular Dystrophy Campaign to register for the event - J.Kingsley@muscular-dystrophy.org Please get in touch with Eilidh or Dean if you intend to come along, thank you.

1. Scotland Cross Party Group on Muscular Dystrophy session - Care Advisor Support

   • Scottish Parliament
   • 8 February 2012

   Cross Party Group in the Scottish Parliament on Muscular Dystrophy session on Care Advisor support: Wednesday 8 February 2012, 1pm - 2.30pm, Committee Room 5, Scottish Parliament, Edinburgh, EH99 1SP The session will focus on the urgent need for increased neuromuscular Care Advisor support for families living with muscle disease in Scotland and the proposed pilot for Muscle Specialist Advisor posts. The session is part of the follow-up to the Cross Party Group's inquiry into access to specialist neuromuscular care and social care in Scotland which resulted in the publication of the Mackie Report in September 2010. MSPs in the Cross Party Group will be following up issues relating to Care Advisor support with NHS bosses and are keen to hear about the experiences of services from people living with muscle disease. To register for this session please get in touch on with the Muscular Dystrophy campaign - 020 7803 4839 or by email j.kingsley@muscular-dystrophy.org If you are planning to attend, please let Eilidh, (eilidh@actionduchenne.org) know.

1. Action Duchenne Love Run 2012

   • Finsbury Park (London), Bute Park (Cardiff) & Heaton Park (Manchester)
   • 11 February 2012

   Action Duchenne Love Run is a 10k timed run and 5k un timed run in Finsbury Park, Cardiff Park & Heaton Park now in its 10th year! Come and join old and new support to celebrate the 10th year.

   http://www.actionduchenne.org/loverun2012

1. Pub Entertainment Night

   • Hull, East Riding of Yorkshire
   • 22 February 2012

   Come and join us for a fantastic entertainment evening at the Star Pub, Hull. The night organised by a brother in-law who owns the establishment has secured some amazing pop tribute acts from Amy Winehouse to Lady Gaga and a raffle with some unique gifts on offer! The night starts at 7pm-1am with a late license and only £5 on the door. Get all your family and friends to come along, for further details contact Diana Ribeiro: diana@actionduchenne.org, 0208-556-9955.

   http://www.actionduchenne.org/stopwasting/DianaRibeiro/event/748/pub-entertainment-night

1. International Rare Disease Day 2012

   • Across the UK
   • 29 February 2012

   Rare Disease Day 2012 is the fifth annual international event which raises awareness for rare diseases. Involving more than forty countries worldwide and including a diverse mix of activities, Rare Disease Day hopes to coordinate policy actions in different countries and provide information for patients, governments and the public. There are events throughout the UK, with talks and exhibitions at Royal Holloway University (http://www.rhul.ac.uk/rarediseaseday), the launching of the Northern Ireland Rare Disease Partnership in Belfast (http://www.raredisease.org.uk/ni-partnership) as well as awareness raising events in West Yorkshire, Bristol, Suffolk, Waterford and Aberdeen (with more being confirmed). For further updates and information check their website, facebook or follow their twitter feed at @rarediseaseday and @RDD2012. If you are planning your own event for the 29th of February, why not let them know by contacting Stephen Nutt (stephen@raredisease.org.uk; 020 7704 3141).

   http://www.rarediseaseday.org/

1. Rare Disease Day at the Royal Holloway University

   • Royal Holloway University
   • 29 February 2012

   Following last year’s successful event, Royal Holloway University, London, will be holding another awareness raising event on Rare Disease Day. All the information about the event, including exhibiting opportunities, is available on the following website or please contact Dr Rafael Yanez rafael.yanez@rhul.ac.uk You can also follow the Royal Holloway Rare Disease Day Twitter @RDD2012

   http://www.rhul.ac.uk/rarediseaseday

1. Rare Disease Day in Northern Ireland

   • Belfast
   • 29 February 2012

   RDUK is an active member of the Northern Ireland Rare Disease Partnership which will be launched officially on Rare Disease Day! In addition, the Patient and Client Council has produced a report looking into experiences of obtaining a diagnosis of a rare disease in Northern Ireland, which will also be launched at the event taking place in the Pavilion on Stormont Estate, Belfast at 11:30am. The event will provide an opportunity to learn more about both of these and to hear from the experiences of patients affected by rare diseases and their carers. For more information, or to RSVP, please contact Sarah McCandles at the Patient and Client Council sarah.mccandless@hscni.net 028 90 32 1230.

   http://www.raredisease.org.uk/ni-partnership.htm

1. Rare Disease Day in West Yorkshire

   • Bradford
   • 29 February 2012

   RDUK member BRADNET is holding an event in Bradford on Rare Disease Day. There is a high prevalence of rare conditions in West Yorkshire, and this has stimulated collaboration in research, data collection, and development of services. To attend, or for more information about this free event, contact Donna Tattersall at donna.tattersall@bradnet.org.uk or on 01274 224444 (when prompted dial extension 528). There may be room for a few posters or tables for leaflet display by support groups (small payment required).

   http://www.raredisease.org.uk/documents/rdd2012_wyorkshire_info.pdf

1. Rare Disease Day in Suffolk

   • Haverhill
   • 29 February 2012

   In advance of Rare Disease Day, Genzyme invited the Chair of Rare Disease UK, Alastair Kent, to speak at their national sales and marketing conference about how industry and patient organisations can effectively collaborate in supporting patients with rare diseases and the forthcoming UK plan for rare diseases. Genzyme's manufacturing centre at Haverhill, Suffolk is to hold a rare disease awareness day with coffee and cakes sales on 29th February.

   http://www.genzyme.co.uk/

March

1. Seeds of Hope 2012

   • Nationwide
   • 1 March 2012 - 1 August 2012

   Seeds of Hope is back bigger and better than the last 2 years we are looking for schools, youth group or even streets across the UK to get their packs and get in the garden and get growing. Which area will have the most sunflowers this year?

1. Kilimanjaro Climb

   • North East - Africa
   • 14 March 2012 - 23 March 2012

   Do you have a fear of heights? Lets hope mum Kathryn Armstrong and her trainer don't as they are taking on a 9 day challenge to climb to the summit of Mount Kilimanjaro to help support Action Duchenne. Kathryn, who has a son with Duchenne, will be climbing 19,340 feet above sea level to reach the summit of the world’s highest free-standing mountain. In doing so Kathryn will be looking to raise as much awareness and funds for Action Duchenne as she can. Kathryn has self funded this challenge so every donation made can go to Action Duchenne. Please show your support by leaving a donation and message of support on her Stop Wasting page, or pledge a donation by texting ACTION KMJ to 70555 Texts cost £5 plus network charge. Action Duchenne receives 100% of your donation. Please obtain bill payers permission. Charity No 1101971. Good luck Kathryn!

   http://www.actionduchenne.org/stopwasting/usr3123212069/event/699/kilimanjaro-climb---14th-march

1. Sponsored SkyDive

   • Perthshire - Scotland
   • 17 March 2012

   Francis and his cousin, Christine Bonner, were scheduled to do a skydive on 28th August 2011. However due to bad weather the skydive has been rescheduled to 17th March 2012. Francis and Christine are determined to complete the jump for Action Duchenne to help raise funds and awareness no matter what the weather may bring! Please show your support and pledge a kind donation and message of support on their Stop Wasting Page, thank you.

   http://www.actionduchenne.org/stopwasting/usr9463703200/event/671/sponsored-parachute-jump-17th-

1. Mother's Day Weekend Skydive

   • Nationwide
   • 17 March 2012 - 18 March 2012

   We are looking for Mother's, Auntie's, Granny, Sister and friends all to take part in the mother's day weekend skydive. Any questions please get in touch with kate on kate@actionduchenne.org or 0208 556 9955

1. Helly Hanson Adventure Challenge

   • North West
   • 24 March 2012

   We have a team of people taking part in the Helly Hanson Adventure Challenge, in Grizedale Forest, Cumbria. This is a tough action packed, adrenaline fuelled adventure.

April

1. Rock 'n' Roll Half Marathon

   • Edinburgh - Scotland
   • 15 April 2012

   You can be part of history in the making by taking part in the first ever "Rock 'n' Roll" half marathon in the UK! Hitting Edinburgh on 15th April 2012 the former ADT Edinburgh Half Marathon will transform into a UK’s first Rock ‘n’ Roll Edinburgh Half Marathon, adding live bands every mile to the course and a post race concert. The streets will be swamped with over 10,000 people looking to get involved with this fun and exciting half marathon and you could be part of it representing Action Duchenne! The format of the event has been honed in the US, where similar events run in 25 different cities, involving half a million runners. With an emphasis on fun and a festive atmosphere, the races attract high numbers of tourists. Registrations for the event are NOW open with entry prices being cheaper the quicker you confirm your booking. Please follow the link to see more information and register or let me know if you want to get involved via email: dean@actionduchenne.org or call me on 07780 955 695.

   http://runrocknroll.competitor.com/edinburgh

1. National Meeting - April 21st in Birmingham

   • Book now for our one day free conference
   • 21 April 2012

   On Saturday April 21st at the Birmingham Hilton Metropole, (B40 1PP), Action Duchenne will be holding a key one day meeting for UK Duchenne families and supporters. The meeting will discuss the implications of the Coalition Government's reorganisation of the NHS, and the impact on Standards of Care for Duchenne. We will assess current patient access to International Standards of Care for Duchenne with examples of best practice from Great Ormond Street Hospital in London. There will be workshops for parents who have chosen to participate in our 'Letting Go' project, which is part of Action Duchenne's exciting new Transition Project. You can sign up online now, the conference is free and we will be providing creche facilities. It's your chance to get involved and support Action Duchenne led National Campaigns in Wales, Northern Ireland, Scotland and England. Get your voice heard! We already have a number of exciting speakers lined up and will be publishing the agenda online soon. Please get in touch if you have any questions, Eilidh Campaigns and Advocacy Manager eilidh@actionduchenne.org 020 8556 9955/07917051446

   http://www.actionduchenne.org/nacmeeting.jsp

1. Greater Manchester Marathon

   • Trafford, Manchester
   • 29 April 2012

   After a 10 year absence the Greater Manchester Marathon in Trafford brings the ultimate running challenge back to Manchester. On the 29th April 2012 thousands of runners will take to the streets to achieve their personal dream. The 26mile 385yard course will take in some key landmarks and beautiful countryside around the borough of Trafford. Contact Esther - 07768620721

   http://www.greatermanchestermarathon.com/

May

1. Belfast City Marathon

   • Belfast - Northern Ireland
   • 7 May 2012

   October 2011 saw family, friends and supporters of both the Hearn and O'Docherty families get together and take part in the Dublin Marathon. The awareness and funds raised for Action Duchenne was a great success. Now parents Yvette and Andrew McClean, together with friends, are looking to do their part by taking part in the Belfast Marathon on 7th May 2012 and hope to raise further awareness and funds for Action Duchenne. Please help support their efforts and make a kind donation while leaving a message of support on Yvette's Stop wasting page. Thank you and good luck everyone!

   http://www.actionduchenne.org/stopwasting/usr3546502767/event/709/belfast-city-marathon-2012

1. China Trek

   • China
   • 10 May 2012 - 19 May 2012

   For a country with the biggest population in the world China remains largely untouched by the west. It is a beautiful country steeped in tradition, history and mythology. For those with a passion for culture and a sense of adventure – China leaves an indelible mark on all who go there... Come trek with us… Minimum sponsorship level £3,000

1. Tough Mudder

   • Boughton House and Estate, Kettering, Northamptonshire
   • 12 May 2012 - 13 May 2012

   Tough Mudder events are hardcore 10-12 mile obstacle courses designed by the Special Forces to test your all around strength, stamina, mental grit, and camaraderie. As the leading company in the booming obstacle course industry, Tough Mudder has already challenged half a million inspiring participants worldwide. But Tough Mudder is more than an event, it’s a way of thinking. By running Tough Mudder, you’ll unlock a true sense of accomplishment, have a great time, and discover a camaraderie with your fellow participants that’s experienced all too rarely these days.

   http://toughmudder.co.uk/events/south-eastmidlands/

1. I'm A Princess - Get Me Outta Here Boot Camp!!

   • Belfast - Northern Ireland
   • 12 May 2012 - 13 May 2012

   Parent Robyn Holoway and her friends will be taking part in a 24 hour "I'm A Princess - Get Me Outta Here" Boot Camp on Saturday 12th May. The boot camp, which is being held at the Belfast Activity Centre, is the first ever boot camp to be held in Northern Ireland. Robyn and her friends will be split into 2 teams and rough it out for 24 hours taking part in a number of events such as canoeing, ropes courses, archery, mountain biking, to name a few, all to help raise awareness and funds for Action Duchenne. Good luck to everyone taking part and thank you!

   http://www.actionduchenne.org/stopwasting/usr8116303253/event/723/get-me-out-of-here-boot-camp

1. London to Brighton

   • London
   • 12 May 2012

   Cycle from London to Brighton cycling along quiet roads and tracks that take us through the beautiful countryside of Surrey and Sussex. 46 miles with breaks and lunch. Entrance fee £20. For more information contact Kate 0208 556 9955 or kate@actionduchenne.org use the below link to sign up and get in touch for tshirt and sponsorship form.

   http://www.redspokes.co.uk/forms/booking_form_cart.php

1. Charity Ball

   • Ewood Park, Blackburn
   • 19 May 2012

   Join us at Ewood Park, the home of Blackburn Rovers Football Club, for what promises to be a fantastic evening. The night will begin at 7.30pm with the bar closing at 1am. * Champagne Reception * Three Course Meal by Northcote at the Rovers * Charity Auction & Raffle Tickets are £40 For more information, contact Esther Derber - 07768620721 or esther@actionduchenne.org

1. Bupa Great Manchester Run

   • Manchester City Centre
   • 20 May 2012

   Run for Action Duchenne in Manchester City Centre at "the nation’s favourite 10k running event." This year will be he tenth staging of the Bupa Great Manchester Run which is live on BBC television. For runners of all abilities Entry fee £37 To run and raise vital funds for Action Duchenne, please contact Esther 07768620721 or esther@actionduchenne.org

   http://www.greatrun.org/events/event.aspx?id=4

1. 2012 Edinburgh Marathon

   • Edinburgh - Scotland
   • 26 May 2012 - 27 May 2012

   Action Duchenne has seen great support over the years with participation in the ever growing Edinburgh Marathon. The event has now incorporated a variety of runs for all levels and the waiting is over as entries for the 2012 Edinburgh Marathon Festival are now open. The 2012 Edinburgh Marathon Festival will incorporate several races over the marathon running festival weekend consisting of the following: Saturday 26th May 2012 will stage the EMF 10km, 5km, 2 Junior Races for runners aged 6-10 and 11-14, an International Breakfast Run, Mascot Race, a 5k wheelchair and 5k hand-bike race. Sunday 27th May 2012 the marathon, half marathon and team relay will take place. Over 30,000 entrants are expected to take part across the Edinburgh Marathon Festival weekend and here is your chance to take part and help Action Duchenne. We have allocated places which are already being snapped up. If you are interested in taking part in any of the events over this weekend then please get in touch with me via email: dean@actionduchenne.org thank you. Remember you can help support those taking part by pledging a £5 donation via text, simply ACTION EDMAR to 70555 Texts cost £5 plus network charge. Action Duchenne receives 100% of your donation. Please obtain bill payers permission. Charity No 1101971

   http://www.edinburgh-marathon.com/

June

1. W2W Cycle Ride

   • North East covering Wanly Island to Weardale and finishing at Sunderland
   • 8 June 2012 - 10 June 2012

   2012 has a different route and a different name, however the determination of father Phil Carr remains the same as he takes to his bike again to help raise funds and awareness for Action Duchenne. This year will see Phil take to the road and cover 63 miles on the first day followed by a further 103 miles on the second day! Inspired by the pioneering Sea to Sea Cycle Route (C2C), the W2W route passes through a variety of wonderful countryside to the south. It stretches between Walney Island, just outside Barrow-in-Furness on Cumbria’s Irish Sea coast and Wearmouth in Sunderland along the North Sea coast. Please show your support for Phil by leaving a message of support and donation on his page, or pledge a donation by texting ACTION W2W to 70555. Texts cost £5 plus network charge. Action Duchenne receives 100% of your donation. Please obtain bill payers permission. Charity No 1101971. Thank you and good luck Phil!

   http://www.actionduchenne.org/stopwasting/usr7706751696/event/698/w2w-cycle-ride

1. North East Zip Slide

   • The Tyne Bridge in Newcastle
   • 16 June 2012

   Do you fancy zipping across the waters of the Tyne while helping to raise funds and awareness for Action Duchenne? Here is your chance to zip wire from the Newcastle side of the bridge and travel diagonally across the River Tyne for 230m before finishing at HMS Calliope on the Gateshead side. The event is very popular with places already sold out for the 17th June, so if you want to have a go on Saturday 16th June 2012 please follow the link to register or get in touch to secure your place.

   http://www.zipslidesuk.co.uk/events/tyne-bridge/11

1. Climb A Ben for Duchenne

   • Scotland
   • 23 June 2012 - 24 June 2012

   2012 will see the Climb A Ben for Duchenne event tackle 2 peaks in the Beinn a'Ghlo range. The climb will see those taking on the challenge cover around 10 miles with the highest peak (Braigh Coire Chruinn-bhalgain) being 3,510ft (1,070metres). Are you feeling up to the challenge of climbing to these dizzy heights and helping raise awareness and funds for Action Duchenne? If you are then please get in touch to register to secure your place. If you don't have a head for heights then please visit Andrew's justgiving page and leave a kind donation with a message of support. Thank you.

   http://www.justgiving.com/teamaghlo

July

1. Tough Mudder

   • Drumlanrig Castle and Country Estate, Thornhill, Dumfriesshire, Scotland
   • 14 July 2012 - 15 July 2012

   Tough Mudder events are hardcore 10-12 mile obstacle courses designed by the Special Forces to test your all around strength, stamina, mental grit, and camaraderie. As the leading company in the booming obstacle course industry, Tough Mudder has already challenged half a million inspiring participants worldwide. But Tough Mudder is more than an event, it’s a way of thinking. By running Tough Mudder, you’ll unlock a true sense of accomplishment, have a great time, and discover a camaraderie with your fellow participants that’s experienced all too rarely these days. You can participate and raise money for Action Duchenne!

   http://toughmudder.co.uk/events/scotland/

1. Lost Ark Motorcycle Club Tour

   • Northern Ireland - Wales
   • 14 July 2012 - 21 July 2012

   BBC Northern Ireland TV announcer, Roy Willighan, is supporting Action Duchenne along with his Riders of the Lost Ark Motorcycle Club from July 14th -21st. The group hope to raise £1,000 and lots of awareness for Action Duchenne on the 700 mile round trip. Further details of the event can be seen following the link. Thank you to everyone involved and good luck with the ride!

   http://www.justgiving.com/2012walesbiketour?fb_ref=fundraising-page-new&fb_source=home_oneline

August

1. Devil O' The Highlands

   • Perthshire - Highlands - Scotland
   • 4 August 2012

   Are you or someone you know an ultra running enthusiast and fancy a challenge? If so then the Devil O' The Highlands 43 mile foot race could just be what you are looking for. With a start time of 6am with a 12 hour time limit this race is ideal for anyone who wishes to up their race distance from a marathon and experience real Ultra-distance running in the company of fellow runners with views of some of Scotlands most beautiful scenery. If you or someone you know feel up to the challenge then please get in touch with me at dean@actionduchenne.org

   http://www.devilothehighlandsfootrace.co.uk/

September

1. Scottish Zip Slide

   • Xscape Braehead in Glasgow
   • 8 September 2012

   Do you fancy zipping across buildings and car park like in the movies while helping to raise funds and awareness for Action Duchenne? Here is your chance to zip wire at the Xscape building at Braehead, Glasgow. The launch point is 40m high on the outside of the building, followed by a 250m zip across the car park. The complex has plenty of entertainment and restaurants to make it a fun filled day out. If you want to have a go on Saturday 8th September 2012 please follow the link to register or get in touch.

   http://www.zipslidesuk.co.uk/events/xscape-braehead/15

1. London to Brighton

   • London to Brighton
   • 8 September 2012

   Cycle from London to Brighton cycling along quiet roads and tracks that take us through the beautiful countryside of Surrey and Sussex. 46 miles with breaks and lunch. Entrance fee £20. For more information contact Kate 0208 556 9955 or kate@actionduchenne.org use the below link to sign up and get in touch for tshirt and sponsorship form.

   http://www.redspokes.co.uk/forms/booking_form_cart.php

1. Pedal Scotland

   • Scotland
   • 9 September 2012

   Stuart Giles, father to Dylan who has Duchenne, together with a team of work colleagues and friends completed the 51 mile cycle ride from Glasgow to Edinburgh on the 11th September 2011 helping to raise fantastic funds and awareness for Action Duchenne. Continuing with the dedication of helping to make a difference Stuart will be taking part in the Pedal for Scotland event again on 9th September 2012. Some supporters from the 2011 ride have already agreed to take part again in the 2012 event. If you would like to get involved and be part of the 2012 team helping to support Action Duchenne then please get in touch.

   http://www.actionduchenne.org/stopwasting/usr4729882942/event/683/pedal-for-scotland-2012

1. Great Wall of China Trek

   • North East - China
   • 13 September 2012 - 22 September 2012

   Gemma Hanna has a nephew, Luke, who has Duchenne and since his diagnosis has been supporting Action Duchenne with raising funds and awareness with various fundraising activities. Gemma along with her work colleague, Clair Hebbron, have decided to take on the challenge of completing the Great Wall of China Trek to help raise further funds and awareness for Action Duchenne. Please help support Gemma and Clair by either donating on Gemma's Stop Wasting Page and leaving a message of support or pledge a £3 donation by texting ACTION CHINA to 70003. Thank you and good luck to Gemma and Clair!

   http://www.actionduchenne.org/stopwasting/usr9950282791/event/712/great-wall-of-china-trek

1. Bupa Great North Run 2012

   • Gateshead Newcastle
   • 16 September 2012

   Action Duchenne has secured 25 places for the 2012 Bupa Great North Run. The world's largest half marathon will see participants covering 13.1 miles between Newcastle upon Tyne and South Shields. The half marathon grows year upon year with over 50,000 people taking part. Action Duchenne has seen fantastic support over the years with families and supporters getting involved helping to raise awareness and funds for the charity. If you, or someone you know, would like to take part then please follow the link below to register your interest. Thank you.

   http://www.actionduchenne.org/gnr

October

1. Vietnam Cycle

   • Vietnam Cycle
   • 25 October 2012 - 5 November 2012

   If you have ever wanted to do an exhilarating challenge for charity here is your chance. Action Duchenne are looking for adventurous volunteers to cycle in Vietnam taking in some of the worlds most breathtaking landscapes. Minimum sponsorship level £3,500

November

1. Action Duchenne International Conference 2012

   • Holiday Inn London
   • 9 November 2012 - 10 January 2012

   More news of the Action Duchenne conference to come. Please put this date in your diary

1. Tough Mudder

   • Cholmondeley Estates, Cholmondeley, Malpas, Cheshire
   • 17 November 2012 - 18 November 2012

   Tough Mudder events are hardcore 10-12 mile obstacle courses designed by the Special Forces to test your all around strength, stamina, mental grit, and camaraderie. As the leading company in the booming obstacle course industry, Tough Mudder has already challenged half a million inspiring participants worldwide. But Tough Mudder is more than an event, it’s a way of thinking. By running Tough Mudder, you’ll unlock a true sense of accomplishment, have a great time, and discover a camaraderie with your fellow participants that’s experienced all too rarely these days. You can participate and raise money for Action Duchenne!

   http://toughmudder.co.uk/

1. Costa Rica Terk

   • Costa Rica
   • 22 November 2012 - 2 December 2012

   The beauty of Costa Rica is staggering, from dense tropical rainforest to rich flora and fauna to forest clad mountains to sparkling blue seas this trek has it all! For those looking for a rewarding challenge through remote and rarely visited regions this trek will not fail to impress. Come trek with us... Minimum sponsorship level £3,500