Searching for a cure, Improving lives

Fundraise for us

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There are lots of great ways to get involved and raise funds for Action Duchenne. In this section you can find event ideas, hints and tips and all the other information you need to get started.

Your contribution, no matter how big or small, allows us to fund research and campaign for better standards of care for all  people living with Duchenne & Becker Muscular Dystrophy.

We are here to help. Please get in contact with our fundraising team and find out how we can support your event by emailing paulbown@actionduchenne.org or calling the office on 0208 556 9955.

Code of Fundraising Practise

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Support Action Duchenne with a monthly or one off donation

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Events

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Registry

Join the DMD registry for access to clinical trials

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Action Duchenne launches new Research Strategy for Duchenne muscular dystrophy

November 17th, 2017

  Action Duchenne, a leading UK-wide patient and parent-led organisation for Duchenne Muscular Dystrophy, is

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Long-term microdystrophin pre-clinical work, moving towards a potential therapy restores muscle function in canines

July 26th, 2017

Promising microdystrophin pre-clinical work, moving towards a potential therapy has shown to restore muscle function

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FDA new approach would reduce number of patients treated with placebo

December 11th, 2017

The U.S. Food and Drug Administration (FDA) has published its recommendation for a new approach

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Results announced from survey ‘Juggling care and daily life’

December 11th, 2017

The 17th October 2017 was an important date for the rare disease community.  The highlights of the

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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