Action Duchenne (formerly PPUK)

  1. Carls Blog : Ann seems very Keen Most recent entry: 17 July 2008

    A meeting featuring members from Action Duchenne Nick Catlin, Esther Derber, Carl Tilson, parents Linda & Fred Tilson,...

    Click here to find out more.

  1. Nicks Blog : Action Duchenne meets with Health Minister Ann Keen Most recent entry: 14 July 2008

    Carl Tilson a young person living with Duchenne met with Health minister Ann Keen today on Monday 14th July. Carl spoke...

    Click here to find out more.

  1. New A-team for Mill Hill / London Borough of Barnet : Golden Boot Most recent entry: 06 July 2008

    Action Duchenne Golden...

    Click here to find out more.

  1. Karls Research Updates : 5. Watch the Olympic Records Tumble. Most recent entry: 21 June 2008

    This review takes on a slightly different form as will become clear below. However, I hope it will nevertheless be of...

    Click here to find out more.

  1. : The Malcheks - Charity Band Night Most recent entry: 27 May 2008
    We are proud to present The Malcheks. 19th July 2008 at 7:30pm
    Click here to find out more.

  1. : Edinburgh Marathon Most recent entry: 27 May 2008
    Well done to all the runners who took part in the Edinburgh Marathon. 
    Click here to find out more.

  1. Diane Goetz Blog : Duchenne trial for PTC124 Most recent entry: 13 May 2008
    PTC Therapeutics would...
    Click here to find out more.

  1. Santhera Blog : Santhera announces clinical trial results Most recent entry: 06 May 2008
    SNT-MC17 is Santhera's version of Idebenone has sucessfully completed a phase 2 clinical trial
    Click here to find out more.

  1. MDEX News : April 2008 MDEX News Most recent entry: 05 May 2008

    MDEX* Newsletter
          March/April 2008 Issue
    *a consortium of clinicians and...

    Click here to find out more.

  1. Pat Furlong's Blog : What's the deal with MYODUR? Most recent entry: 09 April 2008

    It is more than frustrating to hear about something, something that may help and then nothing.  You wait and wait,...

    Click here to find out more.

  1. : the love run Most recent entry: 19 March 2008
    10k love run around battersea park
    Click here to find out more.

  1. Breaking The Chains Of Duchenne : Celebration of Marks Life Most recent entry: 12 March 2008

    It is with great sadness that we have to announce that Mark Styler died on Monday 10th of March. We send our regards and...

    Click here to find out more.

  1. : Loose Cover Event Most recent entry: 03 March 2008
    The event went really well on Saturday
    Click here to find out more.

  1. : Need for better Blood Tests Most recent entry: 23 February 2008