Searching for a cure, Improving lives

Who we work with

Action Duchenne’s board of trustees have directed that the Charity works with both the national and international duchenne communities since it is only by close cooperation we can seek to find a cure, as a community, for duchenne and becker.  The list below is not exhaustive, but illustrates the breadth of duchenne organisations that we currently work with:

Parent Project Muscular Dystrophy (USA)the Duchenne Alliancethe Jett Foundationthe United Parents Project Muscular DystrophyJoining jackthe Duchenne Children’s Trust, Alex’s wish, Duchenne nowthe Duchenne Research Fund, Duchenne Ireland, Duchenne Iceland, The Muscular Dystrophy CampaignHarrison’s FundParent Project Italy Parent Project Spain, and Parent Project Greece.  This list is not exhaustive and you will see it increase as we continue to liaise and work with the world-wide duchenne community in our fight to find a cure for duchenne and becker.

We also work with a range of other organisations, these to help with our campaigning, advocacy, education and research work. You can find them here.

We also work with world-wide research establishments: more details can be found by clicking on the research links

We are currently working with our members to establish an accessible house swap scheme. You can find more details here.


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Summit presents data from Phase 1 clinical programme of lead utrophin modulator, ezutromid

June 22nd, 2017

Summit Therapeutics has today announced the presentation of clinical data from two Phase 1 clinical trials

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What Raxone being given approval through the EAMS scheme means for the Duchenne community

June 22nd, 2017

  Over a number of years we have worked closely with Santhera Pharmaceuticals and other

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Duchenne – How do you measure a life?

Living with Duchenne – an animation

Taking charge of Duchenne

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