Action Duchenne’s board of trustees have directed that the Charity works with both the national and international duchenne communities since it is only by close cooperation we can seek to find a cure, as a community, for duchenne and becker. The list below is not exhaustive, but illustrates the breadth of duchenne organisations that we currently work with:
Parent Project Muscular Dystrophy (USA), the Duchenne Alliance, the Jett Foundation, the United Parents Project Muscular Dystrophy, Joining jack, the Duchenne Children’s Trust, Alex’s wish, Duchenne now, the Duchenne Research Fund, Duchenne Ireland, Duchenne Iceland, The Muscular Dystrophy Campaign, Harrison’s Fund, Parent Project Italy Parent Project Spain, and Parent Project Greece. This list is not exhaustive and you will see it increase as we continue to liaise and work with the world-wide duchenne community in our fight to find a cure for duchenne and becker.
We also work with a range of other organisations, these to help with our campaigning, advocacy, education and research work. You can find them here.
We also work with world-wide research establishments: more details can be found by clicking on the research links
We are currently working with our members to establish an accessible house swap scheme. You can find more details here.