Searching for a cure, Improving lives

‘Into The Future’ Duchenne Leadership Camp Success

Posted on: September 19th, 2016 | 0 comments

The  “Into the Future” Duchenne Leadership Camp  took place on the 16 and 17 September, at Hereward College Coventry.

It was a fantastic weekend marking the end of the Lottery funded Takin’ Charge project, and was designed to inspire, challenge and support young people with DMD move forward as leaders within the Duchenne Community.

They weekend was supported by the only user led group for adults with Duchenne, DMD Pathfinders which emerged from  the Takin’ Charge project.

The Leadership programme was facilitated by Janet and Celine from Takin’ Charge and Jon Hastie and Mark Chapman, along with other members of DMD Pathfinders.

It was also supported by Martyn Sibley from the brilliant Disability Horizons  who spoke about his journey into leadership and encouraged many of the young adults with Duchenne to explore the issues important to them going into the future and to dare to think big!

Colin Rainey from Radio Active 101 based at the University of East London, through his recording of interviews and sound bites, captured the passion, feelings of empowerment and sense of direction for the future that developed over the weekend.

Radio Active 101 uses internet radio and social media to promote inclusion, and active citizenship in an original and exciting way and works to ensure that voices that might not otherwise be heard, get air space.


Banner Theatre, a powerful, innovative, issue-based, multimedia theatre production company worked to demonstrate what can be achieved through collective leadership and being active in groups to bring about changes that are important for individuals and groups.

Sam Waddington, a DMD Pathfinder member said:

“Glad I was able to make it to the first DMD Pathfinders leadership event ‘Into the Future’ … Really useful to discuss together as adults with Duchenne our current achievements, future goals and share ideas on moving the charity forward”

Action Duchenne, through the Takin’ Charge project are delighted to have been instrumental in supporting the first user led organisation for adults with Duchenne to emerge in the Duchenne community.

This is a tremendous legacy of the Takin’ Charge project which in the words of Jon Hastie said:

”The Takin’ Charge project changed lives and inspired us to create DMD Pathfinders”.

We look forward to future collaborations with DMD Pathfinders including at our International Conference in November 2016.


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