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National Meeting Saturday April 21st Birmingham
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On Saturday April 21st at the Birmingham Hilton Metropole, (B40 1PP), Action Duchenne will be holdinga key one day meeting for UK Duchenne families and supporters.
The meeting will discuss the implications of the Coalition Government's reorganisation of the NHS, and the impact on Standards of Care for Duchenne. We will assess current patient access to International Standards of Care for Duchenne with examples of best practice from Great Ormond Street Hospital in London.
There will be workshops for parents who have chosen to participate in our 'Letting Go' project, which is part of Action Duchenne's exciting new Transition Project.
You can sign up online now, the conference is free and we will be providing creche facilities. Its your chance to get involved and support Action Duchenne led National Campaigns in Wales, Northern Ireland, Scotland and England. Get your voice heard!
We already have a number of exciting speakers lined up and will be publishing the agenda online soon.
Please get in touch if you have any questions,
Eilidh
Campaigns and Advocacy Manager
eilidh@actionduchenne.org
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