17
Sep
2008
Centres of Excellence - Action Duchenne meets Minister
- Posted by Nick Catlin at 17:39
- 3 comments
Meeting with Health Minister Shona Robison in Scotland
In Research
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Disclaimer
The Action Duchenne website aims to offer a unique forum for sharing information and ideas in the search for a cure and better medical care for Duchenne and Becker and will at all times attempt to ensure postings are accurate, scientifically peer reviewed and not offensive to individuals. Action Duchenne, however, cannot take responsibility for personal opinions, information and the content of links to other websites. It is essential that you always contact your clinician or GP before taking any course of medication, therapy or supplement.
Nicks Blog
Nick Catlin has a son with Duchenne and is CEO and a founding member of Action Duchenne.
14
Jul
2008
Action Duchenne meets with Health Minister Ann Keen
- Posted by Nick Catlin at 20:15
- 7 comments
Carl Tilson a young person living with Duchenne met with Health minister Ann Keen today on Monday 14th July. Carl spoke from the heart about Duchenne:
03
Jul
2008
Ring Fence Duchenne
- Posted by Nick Catlin at 14:47
- 0 comments
Our champion MP Nigel Evans debated with Health Minister Dawn Primarolo last night July 2nd (view the Hansard full debate notes in our document library www.actionduchenne.org) in the House of Commons on Duchenne Muscular Dystrophy.
24
May
2008
Action Duchenne calls for an immediate and thorough review of the use of steroids in treating Duchenne
- Posted by Nick Catlin at 21:24
- 0 comments
Action Duchenne has received information from the coroners report concerning the sudden death of a little boy in Wales with Duchenne.
21
May
2008
Steroids and Ulcers
- Posted by Nick Catlin at 19:59
- 6 comments
It is with great sadness that we have to report that a 7 year old boy in Wales with duchenne muscular dystrophy undergoing steroid treatment died suddenly on 27 April 2008. The thoughts of everyone at Action Duchenne goes to his family at this time. The family have asked Action Duchenne to bring to parents’ attention the circumstances surrounding his death.
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Recent comments
Ian Griffiths wrote:
I Live in Wales and much like Scotland, services are pretty much non-existant. Thus......
Paul Fitzpatrick wrote:
What do you do when a system has failed? you revamp it wrap it up in some new......
Paul Ackroyd wrote:
I agree with Nick's comments, particularly the idea that 50 new care or support co......