Face to Face with Duchenne - 6th Annual Duchenne Conference
Friday 31st October 9.00am – 6.00pm
Saturday 1st November 9.00 – 6.00pm 7.00pm Conference Dinner
Sunday 2nd November Morning Brunch with researchers and families
Holiday Inn Bloosbury Coram Street London WC1 NHT
There will be presentations with Q&A in the main hall and special "ask the expert" seminars and workshops
FULL AGENDA download pdf
Call for Posters - There will be a prize of £500 for the best poster at conference this year. Register the title of your poster and the details of your research group here.
- Ann Keen Health minister will be giving a key note speech on the Friday
- Meet leading international Duchenne scientists at the cutting edge of new research
- Understanding how to ensure the best medical care
- Find out about new clinical trials
- Help to raise awareness of Duchenne and join our campaigns for a cure
- How you can help to fund new research. Share your successes
- Meet other families in your region and share experiences
Family members, people living with Duchenne, researchers, clinicians, physiotherapists, teachers, Learning support assistants, SENCo's, occupational therapists, physchologists, speech therpapists, nurses and all health professionals are welcome to come and learn more about Duchenne.
- What is exon skipping and will it work?
- Who will benefit form PTC124?
- Are schools making adequate provision?
- Can physiotherapy help?
- What is a point mutation, duplication or a deletion?
- Are there drugs to help the heart?
- What is the difference between invasive and non invasive ventilation?
- Should I be involved in clinical trials?
- Will stem cells work for Duchenne?
- Will my child have learning and behaviour problems?
- How do I apply for a grant to adapt my home?
- What benefits can I claim?
- What should I say to my child about Duchenne?
- Are there any new drugs for Duchenne?
- How safe are steroids?
- Do pharmaceutical companies research into treatments for Duchenne?
- Is Britain lagging behind other countries in medical care and support?
- What is the DMD Registry and how do I register
Speakers will include:
- Ann Keen Department of Health Minister
- Professor Dame Kay Davies University of Oxford
- Professor Steve Wilton University of Western Australia
- Professor Kate Bushby University of Newcastle
- Professor Francesco Muntoni Great Ormond Street London
- Professor Nic Wells Imperial College London
- Dr Michelle Eagle University of Newcastle
- Dr Jenny Morgan UCL London
- Dr Adnan Manzur Great Ormond Street London
- Dr Jon Tinsley Summit plc Oxford UK
- Dr Thomas Meier Santhera Pharmaceuticals Switzerland
- PTC Therapeutics USA
- Gerard Platenburg Prosensa Holland
Accomodation:
Special Conference rates for delegates at the Royal National Hotel (2 mins from the conference venue) until September 19th 2008.
Let us know if you need a room for a disabled delegate. (call us 02085569955)
£90 for a twin room inc VAT and English Breakfast.
Please contact the central reservations office to make reservations Tel:020 72787871/2/3 Fax 020 78374653 or info@imperialhotels.co.uk.
Credit card details required to confirm reservations. Ref "Action Duchenne"
Registration:
We have a bargain early bird deal of £40 single, £60 for a couple for the whole weekend that includes all meetings and seminars, lunches, coffee and the fantastic Saturday night dinner and auction.
Complete the form below to register and then you will be taken to our shop page where you can pay online by credit card or you can pay by credit card over the phone by calling Kelly 0208 556 9955 or send us a cheque payable to Action Duchenne.
