realthomo Outside The UK
Joshuas-family West Midlands
KatieM Wales
jaywalls East Midlands
AngelaBraviner North East
sarahb2205 South West
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Know your gene. Join the Registry.
The DMD Registry has been set up as a tool for research groups to find patients with specific gene variations and other clinical criteria for new Duchenne clinical trials. In 2008 the MDEX team have used the Registry to make contact with patients for the UK exon skipping trial.