making muscle wasting history

Parliamentary Campaigning

Campaigning for Duchenne

Writing to your MP

Other than our parliamentary lobbies, one of the most important ways to build on the contacts made with decision makers is to write to your MP, (you can do this through our website).

We are asking members to write to their MPs, to ask the Health Minister Andrew Lansley to meet with Action Duchenne.

You can write to your MP easily by following the simple steps on our website here.

Parliamentary lobbies

A really important part of Action Duchenne's campaign work are our parliamentary lobbies. It's our chance to deliver our messages directly to our MPs, (and MSPs/AMs/MLAs) and make sure they know we expect them to make sure Standards of Care are delivered for all boys with Duchenne.

This year we will held lobbies thoughout the UK. With elections having being held in Scotland, Wales and Northern Ireland on the 5th May - our June lobbies were a great chance to meet with your new representatives and let them know what you expect them to do to for Duchenne.

Find out about what we achieved at our lobbies this year -

2011 Lobbies

Northern Ireland - 8th June

Westminster - 15th June

Wales - 22nd June

Scotland - 29th June