We’d like to thank everyone for coming along to our three Regional Roundtables in February 2017; Northern Ireland (06/02/17), Scotland (07/02/17) and Wales (13/02/17).
Below are the presentation slides from all three events. The sections are split into four categories: Research, Bone Health and Respiratory Management, Access to Medicines and Children’s Hospice Association Scotland (CHAS).
|Research||Bone Health and Respiratory Management||Access to Medicines||CHAS (Scotland only)|
|Northern Ireland (06/02/17)||Diana Ribeiro (Action Duchenne) - Clinical Trial Update||Isobel Doughlad, Michael Shields and Sandya Tirupathy (Queens University Belfast) - |
Bone Health and DMD
Michael Shields (Queens University Belfast) - Respiratory Management
|Fiona McLaughlin |
(Northern Ireland Rare Disease Partnership)
|Scotland (07/02/17)||Diana Ribeiro (Action Duchenne) - Clinical Trial Update|
Alan McNair (Chief Scientific Office) - Health & Social Care Research Strategy 2015-2020
|Jarod Wong and Shuko Joseph (University of Glasgow) - Bone Health in DMD and SCOT-DMD Update||Aileen Campbell MSP - Access to Medicines in Scotland||Claire Turnbull (Transition Manager)
Sue Hogg (Director for Children and Families)
|Wales (13/02/17)||Diana Ribeiro (Action Duchenne) - Clinical Trial Update||Dr Zaheer Yousef (Cardiff Hospital) - Local services and Research||Nick Meade (Genetic Alliance) - Part One and Part Two - Access to Specialised Medicines in Wales|
If you have any questions or want to know more information about the presentations above please contact Diana Ribeiro (CEO) on 020 8556 9955 or via firstname.lastname@example.org