Searching for a cure, Improving lives

Presentations from Regional Roundtables Winter 2017

 

We’d like to thank everyone for coming along to our three Regional Roundtables in February 2017; Northern Ireland (06/02/17), Scotland (07/02/17) and Wales (13/02/17).

Below are the presentation slides from all three events. The sections are split into four categories: Research, Bone Health and Respiratory Management, Access to Medicines and Children’s Hospice Association Scotland (CHAS).

 

DSC00422 (edited)

 

 

 ResearchBone Health and Respiratory ManagementAccess to MedicinesCHAS (Scotland only)
Northern Ireland (06/02/17)Diana Ribeiro (Action Duchenne) - Clinical Trial UpdateIsobel Doughlad, Michael Shields and Sandya Tirupathy (Queens University Belfast) -
Bone Health and DMD
Michael Shields (Queens University Belfast) - Respiratory Management
Fiona McLaughlin
(Northern Ireland Rare Disease Partnership)
Scotland (07/02/17)Diana Ribeiro (Action Duchenne) - Clinical Trial Update

Alan McNair (Chief Scientific Office) - Health & Social Care Research Strategy 2015-2020
Jarod Wong and Shuko Joseph (University of Glasgow) - Bone Health in DMD and SCOT-DMD Update Aileen Campbell MSP - Access to Medicines in ScotlandClaire Turnbull (Transition Manager)

Sue Hogg (Director for Children and Families)
Wales (13/02/17)Diana Ribeiro (Action Duchenne) - Clinical Trial UpdateDr Zaheer Yousef (Cardiff Hospital) - Local services and ResearchNick Meade (Genetic Alliance) - Part One and Part Two - Access to Specialised Medicines in Wales

 

DSC00470 (edited)

 

If you have any questions or want to know more information about the presentations above please contact Diana Ribeiro (CEO) on 020 8556 9955 or via diana@actionduchenne.org

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