Action Duchenne implemented some research policy documentation in 2010, which outlines terms of reference and procedures. These policies still stand, but the implementation has been slightly modified to reflect the changing research world and needs from the community.
Action Duchenne launched the biannual call for applications at last year’s international conference. This means that applications will only be considered in January and July and will take at least three months to be evaluated in the peer-review process.
We invite any international researcher/academic or indeed clinician to submit either a pre-application or full application form directly to Diana Ribeiro, Head of Research, Action Duchenne: Diana@actionduchenne.org. If the application fits our research strategy, the applicant will be informed and during the funding cycle enter into the peer-review process.
Action Duchenne have implemented a two stage peer-review process (see Figure 5). Only if the application passes both peer-review rounds will the project be fully or partially funded.
The aim of this process is to select the best proposals based on the advice and expertise of our lay and scientific advisory board, which are independent and provide both vital perspectives in reaching the funding decision. Our scientific advisory board, international and leading experts in Duchenne research offer the best possible support and rigour behind this process.
Furthermore, as well as the standards of review criteria we established in 2010. Action Duchenne has adopted the NIH scoring system; this was designed to encourage reliable scoring of applications.
Once a contract is placed, Action Duchenne leads the way in monitoring these grants. Principal investigators leading the proposal are required to submit quarterly reports or updates around significant project milestones. This is assessed and compared to the original project aims. After a project is complete Action Duchenne will share the main findings (non-confidential data) and encourage these key figures to present at our annual international conference and engage with our supporters and delegates.