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AJsFairyGodmother

Location: South East

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Why I Am Here.. - AJsFairyGodmother

I had known Jamie since I was 5, he was the brother of my best friend, we watched football matches and movies together, went out for day trips and had fun. Jamie was 9 years older than me and I loved him like a brother, even though I have 2 of my own! Jamie passed away when he was 19 after his long battle with DMD, then, I didn't know what he had wrong with him, now I fully understand.

Jamie's sister and I are all grown up now and she has her own babies, one boy and one girl, Alfie is the most gorgeous little boy, good as gold too! I love him like he's my own. Sadly, Alfie has DMD too... this is why I am here. I do not want a repeat of history and will do anything to stop it. It's horrid to know exactly what might happen to Alfie if a cure isn't found soon, he may only be a year old now but the sooner the cure is found, the better!

Comments

  1. NeeruNM on 10:03PM, 09 August 2010 |

    Hey, thxs for requesting me as friend on here!! Really sad to hear about the reason why your on this site, but glad that u are doing your bit to find that much needed cure:-)
    Is that Alfie in your pic, he is soooo cute?
    Spk Sn
    Neeru

  2. AJsFairyGodmother on 00:59PM, 10 August 2010 |

    Hi Neeru,
    Yep, that's Alfie, he's awesome saw him over the weekend and he's walking now... plan to keep him that way!! He is my gorgeous little monkey and getting bigger everyday!!
    Steph x

  3. NeeruNM on 01:26PM, 22 August 2010 |

    hey, only just logged on here after ages as my bro was in hospital for just over 2 weeks, all fine now tho:-)

  4. NeeruNM on 01:29PM, 22 August 2010 |

    Continued from above - was really sorry to hear about your grandad, hope the funeral wasn't too dofficult xx
    Definatly a gorgeous lil monkey, enjoy every moment xxx

  5. Helenduell on 08:03PM, 02 March 2012 |

    I am with you there. My wonderful brother was diagnosed at the age of 3. I watched him grow up and deteriorate. He passed away at the age of 20. My little boy was diagnosed at 8wks, after not knowing I was a carrier until after he was born. It's hard knowing what's coming, but I take each day at a time and live life to the full. My beautiful baby is 17 months now and almost walking.

  6. Helenduell on 08:05PM, 02 March 2012 |

    I also have a daughter, who is 3, she may be a carrier too, but hopefully medical science will improve. Fingers crossed xx

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