making muscle wasting history

Ataluren Trial is cancelled

• 03:10AM, 06 March 2010
• 1 comments
• Permanent link

I have spoken with families this week whose sons have been on the Ataluren trial in the UK. All parents are very upset that the trial has stopped. Everyone at Action Duchenne sends our support to those families and also the clinical teams who have worked very hard to get this trial up and running,

Treat NMD/EMEA workshop

• 10:24PM, 01 October 2009
• 0 comments
• Permanent link

The international Duchenne community met on 25th September in London with the EMEA and other regulatory authorities. Action Duchenne was represented by Nick Catlin, Divyesh Popat and consultant Lincoln Tsang.

US Government funds PTC research for Atuluren

• 04:01PM, 15 June 2009
• 1 comments
• Permanent link

Why does the UK Government not fund Biotech companies research programmes?