making muscle wasting history

We have been campaigning for some time to win more money for research and better care for our kids. This Government has already decided to make massive cuts that we know will ultimately affect us and our children with disabilities.

There is no reason for us to pay such a price for the failings of the banks and successive UK governments.

The NHS reforms will not help our sons. GP's have no ability to provide expert care - full stop.

Like other rare diseases we need specialist centres of excellence across the UK. We also need more funding to bring new drugs to the market.

The government now needs to prepare to fund long term expensive drugs for all those children with Duchenne. How will they do it?

Rare Disease UK is an alliance of many organisations who are campaigning together to fight for these changes. We should support their activities.

Join us during Rare Disease week check out:

http://www.actionduchenne.org/rarediseaseday2011