making muscle wasting history

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About Muscular Dystrophy

Muscle diseases cause muscles to waste and weaken making it hard for those affected to do even the simplest of tasks. The conditions don't just affect the muscles in the arms and legs but the heart and respiratory muscles too. It is a life limiting disease. There are no cures at present. Duchenne is a genetic condition that affects mainly boys. Boys with Duchenne are only likely to live shortly beyond their 20's, which is why we need to find a cure and fast!!

Action Duchenne was established to find a cure or more effective medicines to treat Duchenne Muscular Dystrophy. Since 2001 they have funded key research projects and supported clinical trials that are making real progress towards our key aim.

Their Medicines for Duchenne programme is now producing real results in terms of clinical trialling new drugs to treat Duchenne Muscular Dystrophy.

Let's get right behind the 'Stop wasting' campaign right now. We don't have a moment to waste.

About Alex

Alex is a little boy who I look after at the Rothley Park Kindergarten and have known him for 4 years now. I am doing this Sky Dive to help him and his parents(Emma and Andy Hallam) to raise much needed funds.

He is very outgoing little boy, he loves nothing more than playing with friends at nursery, especially football.

Alex is a lovely natured boy and loves lots of cuddles and kisses. He adores going to nursery as he loves being active and making the most of life.

Alex knows he has poorly muscles, but that's all he knows at the moment (it's all he has to know), and his parents want to keep it that way until he gets older.

Previous Events [1]

• Tandem Sky Dive - 02 October 2010

  Myself and 9 others will be taking to the skies to raise much needed money for Action Duchenne. ...

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