making muscle wasting history

Upcoming Events [0]

DeanWidd has no upcoming events.

About DeanWidd

About Me

I became Regional Advocate for Scotland in December 2008, which has led to me now being Regional Development Officer for Scotland, Ireland and the North East of England. Prior to coming into this role I supported Action Duchenne (then PPUK) when my son, Arryn, was diagnosed with Duchenne.
I strongly believe that we can make a change happen for our children and stop this terrible disease. I have seen overwhelming support from parents, friends and volunteers helping us all to get closer to finding a viable treatment and possible cure for Duchenne and Becker. It's time to stop wasting!

Interests

Like music a great deal, joys of an ex musician in the forces! Enjoy a bit of console playing from time to time, cinema, good food, and travel. One day I may get to Bora Bora who knows!! But my main interest is ensuring I help in anyway possible to find a treatment or cure for Duchenne and Becker.

Music & Movies

Like swing music and rock and most pop. Fav swing artist Michael Buble with fav rock Bon Jovi. Like this Adele singer as well!

Matrix, Inside I'm Dancing, Mr & Mrs Smith, Cinderalla Man, A Few Good Men, Avatar, Limitless...far too many to mention actually! If it has a great story or plenty or action then I am easily pleased!

Previous Events [18]

• Dundee Score4Duchenne - 26 December 2011

  Action Duchenne has gained great support with our Score4Duchenne appeal from Dundee Football Clu...

• Bupa Great North Run 2011 - 18 September 2011

  This years 2011 Great North Run again saw fantastic support and participation with parents, frie...

• Assemble and Leap - £4,000 Raised. - 21 August 2011

  On Sunday 21st September I attended the Highland Dancing Commonwealth Championship at Stirling U...

• Action Duchenne BBQ - 14 July 2011

  After supporting Action Duchenne with the Seeds of Hope Campaign Acrewood Nursery in Stirling de...

• Sunderland Sea Front Sponsored Walk - 10 July 2011

  Patrick Bailly along with supporters and friends took to the streets of the sea front on Sunday ...

• Ireland Lobby 2011 - 08 June 2011

  Wednesday 8th June saw the second Action Duchenne lobby at Stormont in Northern Ireland sponsore...

• Challenge Scotland - 05 June 2011

  Hundreds of people took up the "Challenge Scotland" event held at Holyrood Park on Sunday 5th Ju...

• Edinburgh Marathon 2011 - 22 May 2011

  Sunday 22nd May 2011 saw the Edinburgh Running Festival get under way with some 30,000 people ta...

• Morrisons Bag Pack - 05 March 2011

  On Sunday 5th March 10 volunteers came to help do a bag pack with me at the Morrisons store in L...

• 2010 Great North Run - 19 September 2010

  It rained. It became dry. Then it rained some more. This year’s Great North Run certainly had a ...

• Newcastle Abseil 2010 - 12 September 2010

  Sunday 12th September saw over 30 people abseil down the Newcastle civic centre to raise awarene...

• London Lobby 2010 - 16 June 2010

  On Wednesday 16th June I joined boys and young men living with Duchenne Muscular Dystrophy, thei...

• Edinburgh Marathon, Half Marathon and Team Relay - 23 May 2010

  Sunday 23rd May brought thousands of people together as this years Edinburgh Marathon took place...

• Action Duchenne Christmas Fayre - 12 December 2009

  Sheila and Derry Milne held an Action Duchenne Christmas Fayre at St.Aidan's Church Hall this w...

• Edinburgh Big Fun Run - 03 October 2009

  Saturday 3rd October 2009 saw the gathering of 13 brave people take part in the Edinburgh Fun Ru...

• Lobby of Northern Ireland Parliament - 22 June 2009

  Monday 22nd June 2009 saw Action Duchenne's first lobby held at Stormont, Northern Ireland.
  

• Westminister Lobby 2009 - 16 June 2009

  This year I will be joining the other regional advocates, parents and supporters to lobby the pa...

• Lobby of Scottish Parliament 2009 - 03 June 2009

  Wednesday 3rd June 2009 saw Action Duchenne families and supporters come to Holyrood to lobby th...

Your Shout [3] - (View All Articles)

• No Let Up, Even for Christmas and New Year!
  00:27PM, 24 December 2011 | 0 comments

  Continued support over Xmas and New Year for Action Duchenne.

• Meeting and Care Advisor Update
  11:46AM, 03 December 2011 | 0 comments

  Meeting on the 4th & 5th December in Belfast and update of Care Advisor.

• Summit Receives FDA Orphan Drug Status
  09:24AM, 25 November 2011 | 0 comments

  UK drug discovery company, is pleased to announce that the United States Food & Drug Administration ('the US FDA') has granted orphan drug status to the clinical candidate SMT C1100.