making muscle wasting history

Upcoming Events [0]

DeanWidd has no upcoming events.

About DeanWidd

About Me

I became Regional Advocate for Scotland in December 2008, which has led to me now being Regional Development Officer for Scotland, Ireland and the North East of England. Prior to coming into this role I supported Action Duchenne (then PPUK) when my son, Arryn, was diagnosed with Duchenne.
I strongly believe that we can make a change happen for our children and stop this terrible disease. I have seen overwhelming support from parents, friends and volunteers helping us all to get closer to finding a viable treatment and possible cure for Duchenne and Becker. It's time to stop wasting!

Interests

Like music a great deal, joys of an ex musician in the forces! Enjoy a bit of console playing from time to time, cinema, good food, and travel. One day I may get to Bora Bora who knows!! But my main interest is ensuring I help in anyway possible to find a treatment or cure for Duchenne and Becker.

Music & Movies

Like swing music and rock and most pop. Fav swing artist Michael Buble with fav rock Bon Jovi. Also Will Young is great with his single 'changes'.

Matrix, Inside I'm Dancing, Mr & Mrs Smith, Cinderalla Man, far too many to mention actually! If it has a great story or plenty or action then I am easily pleased!

Previous Events [7]

• London Lobby 2010 - 16 June 2010

  On Wednesday 16th June I joined boys and young men living with Duchenne Muscular Dystrophy, thei...

• Edinburgh Marathon, Half Marathon and Team Relay - 23 May 2010

  Sunday 23rd May brought thousands of people together as this years Edinburgh Marathon took place...

• Action Duchenne Christmas Fayre - 12 December 2009

  Sheila and Derry Milne held an Action Duchenne Christmas Fayre at St.Aidan's Church Hall this w...

• Edinburgh Big Fun Run - 03 October 2009

  Saturday 3rd October 2009 saw the gathering of 13 brave people take part in the Edinburgh Fun Ru...

• Lobby of Northern Ireland Parliament - 22 June 2009

  Monday 22nd June 2009 saw Action Duchenne's first lobby held at Stormont, Northern Ireland.
  

• Westminister Lobby 2009 - 16 June 2009

  This year I will be joining the other regional advocates, parents and supporters to lobby the pa...

• Lobby of Scottish Parliament 2009 - 03 June 2009

  Wednesday 3rd June 2009 saw Action Duchenne families and supporters come to Holyrood to lobby th...

Your Shout [3] - (View All Articles)

• Need a brave supporter!!
  02:00PM, 26 August 2010 | 0 comments

  Feeling brave? Want to do something different while helping make a difference? Fancy doing an abseil, then read on......

• London Lobby 2010
  05:54PM, 17 June 2010 | 0 comments

  Action Duchenne London Lobby 2010

• Parliament recognises Seeds of Hope Campaign
  04:30PM, 09 June 2010 | 0 comments

  Support from a Scottish school for the Seeds of Hope campaign reaches parliament.