making muscle wasting history

Upcoming Events [0]

iangriff has no upcoming events.

About iangriff

Movies

I like movies that are interesting and have no profanity or obscene scenes, nearly impossible to find sadly

Music

Chicane, Dj Tiesto, Ludovico Einaudi and a lot more!

Interests

Art, mainly digital. Writing Poems and stories. Reading. Music listening.


Wales, Welsh rugby team, Cardiff city, Cardiff Blues, and Manchester United!

About me!

Hi, I'm Ian, 27 from South Wales. I was born in 1984, when there was no hope! Hopefully now there is hope for us. I'm flying the flag for us older DMD sufferers! Our time is extremely precious, it really is a race against time.
I use my artistic talents to help ActionDuchenne. I've made numerous products. Currently I'm trying to make more awareness through my book.
I've written a book about my life with DMD, im no great author, but it's going to be interesting i'm sure. It is available in the Action Duchenne web shop! It is called DMD, life art and me.
Heres to all my fallen comrades robbed of life by DMD! Things will change!

You can see my art gallery here at;
http://www.artwanted.com/artist.cfm?ArtID=66134

You can see my videos on DMD at; http://www.youtube.com/user/iangriff2007

My website for older duchennemen is at; http://duchennemen.net16.net


Take care all!
lots of love,
Ian

Poems for fallen DMD men and boys

A tribute...

This is a tribute to all my fallen comrades

They were not slain by weapons

Nor war wounds but still heroes to the end

Taken by the dark claw of this deadly muscle disease

They were strong to the fore

Strength to their core while all around muscles receded

They were workers, businessmen, artists and friends

An inner power of towering energy known no bounds

Great public orators letting all know their struggle to be equal

To be equal in standards of care, equal in love

Equal in society in a world not geared for them

From innocent childhood to paralysing adulthood

Miserery not their style, happiness and warmth their comforter

No pity for them please

Just remember them

The brave forgotten few

Our brothers, our sons, our fathers, our friends

Taken before their time.








by Ian Griffiths




Heres another poem,

The Duchenne Soldier

O glorious band of brothers we,

Fighting an enemy unseen, Unheard of,

Unknown by the masses, always deadly none-the-less,

We who have no choice, no Kings shilling for us,

No special uniform, only a wrecked body

No regiments, no battalions, no guns, just each other,

From Mother to Brother, Father to Sister,

Genetic disease our conflict, our war,

will we win? - we're still waiting for the magic bullet,

Paralysis the enemy tank, Lack of knowledge - a cruel propagander,

Please help! our battle cry until our dying breath,

A one hundred percent death rate, no parades for us,

Just a quiet family heartbreak,

This is what it means to be a Duchenne Soldier.



by Ian A Griffiths

Previous Events [3]

• Bid for a print - Light on the Waves - Event page - 10 July 2010

  
  THIS COMPETITION HAS ENDED, Well done to our winner Janet Nagle!!
  
  
  I am pu...

• Giant Poem Challenge - 31 October 2009

  Giant Poem Challenge!
  
  I will write ONE line of Poetry for a minimum sponsorship of £5...

• South Wales Endurance Relay - 18 July 2009

  I'd like to thank all who took part in the successful event! and thank you all current sponsors!...

Your Shout [3] - (View All Articles)

• My Autobiography-published and ready to buy!!
  02:23AM, 27 May 2011 | 2 comments

  I wrote a book an autobiography all about how my life has been shaped and molded by DMD, Art and a Higher Power. Read all about this and much more in my book available to buy on ACTION DUCHENNE'S WEBSHOP!!!!

• 8 point plan to coping with DMD for parents.
  01:11AM, 16 November 2010 | 0 comments

  My 8 point plan to help parents

• Lets do some self counsel.....
  05:33PM, 21 October 2010 | 0 comments

  Why wait for the nhs to provide counselling. A brief experiment.