making muscle wasting history

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About iangriff

Movies

I like a wide variety, including the green mile, matrix, die hard movies and some comedies!

Music

Absolutely love the stereophonics! Chicane, Dj Tiesto and a hell of alot more!

Interests

Art, mainly digital. Writing Poems and stories. Reading. Music creation, music listening.


Wales, Welsh rugby team, Cardiff city, Cardiff Blues, and Manchester United!

About me!

Hi, I'm Ian, 24 from South Wales. I was born in 1984, when there was no hope! Hopefully now there is hope for us. I'm flying the flag for us older DMD sufferers! Our time is extremely precious, it really is a race against time.
I use my artistic talents to help ActionDuchenne. I've made postcards, christmas cards, an easter poster and ticket design. Currently I'm trying to make more awareness through posters aimed at making people stop and think.
I'm writing a book about my life with DMD, im no great author, but it's going to be interesting i'm sure.
Heres to all my fallen comrades robbed of life by DMD! We will change things!

You can see my art gallery here at; http://thebigg2005.deviantart.com/gallery/

You can see my videos on DMD at; http://www.youtube.com/user/iangriff2007

My website for older duchennemen is at; http://duchennemen.sitesled.com


Take care all!

Poems for fallen DMD men and boys

A tribute...

This is a tribute to all my fallen comrades

They were not slain by weapons

Nor war wounds but still heroes to the end

Taken by the dark claw of this deadly muscle disease

They were strong to the fore

Strength to their core while all around muscles receded

They were workers, businessmen, artists and friends

An inner power of towering energy known no bounds

Great public orators letting all know their struggle to be equal

To be equal in standards of care, equal in love

Equal in society in a world not geared for them

From innocent childhood to paralysing adulthood

Miserery not their style, happiness and warmth their comforter

No pity for them please

Just remember them

The brave forgotten few

Our brothers, our sons, our fathers, our friends

Taken before their time.








by Ian Griffiths




Heres another poem,

The Duchenne Soldier

O glorious band of brothers we,

Fighting an enemy unseen, Unheard of,

Unknown by the masses, always deadly none-the-less,

We who have no choice, no Kings shilling for us,

No special uniform, only a wrecked body

No regiments, no battalions, no guns, just each other,

From Mother to Brother, Father to Sister,

Genetic disease our conflict, our war,

will we win? - we're still waiting for the magic bullet,

Paralysis the enemy tank, Lack of knowledge - a cruel propagander,

Please help! our battle cry until our dying breath,

A one hundred percent death rate, no parades for us,

Just a quiet family heartbreak,

This is what it means to be a Duchenne Soldier.



by Ian A Griffiths

Previous Events [2]

• Giant Poem Challenge - 31 October 2009

  Giant Poem Challenge!
  
  I will write ONE line of Poetry for a minimum sponsorship of £5...

• South Wales Endurance Relay - 18 July 2009

  I'd like to thank all who took part in the successful event! and thank you all current sponsors!...

Your Shout [1] - (View All Articles)

• What it feels like lately....
  01:22AM, 23 December 2009 | 2 comments

  Explaining what my current worsening feels like. Just want to tell my story.