My friend Sam passed away very very recently. You may know him on here as Samtheman. He had the most terrific smile thoughout his many health trouble's. I loved his quest and thirst for information and his loving nature was so admirable. I only knew you for a brief year or so, it was far too short a time. I so hoped my answers helped you and gave you most knowledge on Duchenne. We all miss you and Love you. Sleep well my friend, nothing can hurt you now, you're free from all your troubles.
I'd like to leave my poem 'A tribute' on here, it is an ever poignant message now;
A tribute...
This is a tribute to all my fallen comrades
They were not slain by weapons
Nor war wounds but still heroes to the end
Taken by the dark claw of this deadly muscle disease
They were strong to the fore
Strength to their core while all around muscles receded
They were workers, businessmen, artists and friends
An inner power of towering energy known no bounds
Great public orators letting all know their struggle to be equal
To be equal in standards of care, equal in love
Equal in society in a world not geared for them
From innocent childhood to paralysing adulthood
Miserery not their style, happiness and warmth their comforter
No pity for them please
Just remember them
The brave forgotten few
Our brothers, our sons, our fathers, our friends
Taken before their time.

I am so sorry to hear about SAM such a sad loss god bless u x Sharron
Thanks Sharron xx
xxxxx