making muscle wasting history

I thought this year's conference was fantastic - a huge well done to all the team for a really professional and well organised event. I learned a lot, feel more hopeful about the future, and much more confident about what we are doing with Saul's care (or at least know what we should be doing!). I met some lovely people, and caught up with old friends who make this journey I would never have chosen to be on a lot easier.
Research aside, my favourite part was Tony Levene's speech on Friday night about Number 51 Exon Skipping Avenue. It really sums up for me what Action Duchenne is all about. We all desperately want a cure for our children, but we're also all in this together and we won't stop until all those living with Duchenne have hope in a potential cure/treatment for their condition. As individuals we might be very good at providing for our sons/daughter, but only as an organisation can we move politicians, lobby regulatory authorities and do all the things we need to get this research from the lab to a drug. I saw in the news last week that Autism has managed to get a bill passed in Parliament I think about Adult care. That would never have happened without a well organised campaign and I'm sure there's lots we can learn from them. As Karl Bettleheim said on Saturday to AVI - we want to make sure that the last boat (containing the last treated mutations) gets across the river to the treatment/cure on the other side.