making muscle wasting history

Up until about 6 years ago I didn't really know what Duchenne Muscular Dystrophy was. Then my grandson Zak was diagnosed at 18 months. To say it was a shock is a massive understatement. My daughter Victoria (Vici to most people) always had a gut instinct that something was amiss and it was down to her insistence that eventually we found out the diagnosis.
There is no known history in the family and neither her nor I are carriers. It seems it is a spontaneous mutation. This was an even bigger shock as it means that ANYONE is as much at risk as Victoria was. It is not only those who have known family members with the condition. Although in this case the risk is higher there is a risk to any expecant mum that her child will be affected.
As the numbers are still relatively, small compared to cancer conditions, maney is not always readily forthcoming so I try to support financially but also by spreading the word. People need to be aware of the risk to ANYONE and also how research can have positive offshoots for many other dibilitating conditions.
Hopefully funding will be found to keep the research ongoing and we will see benefits for a large number of the children (mainly boys) affected and of course I would love to see personal benefits for our Zaki as well.
Keep spreading the word!!