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jenbob is... DOING A SPONSORED SKY DIVE!!! PLS SPONSOR ME VIA THE EVENTS SECTION BELOW.
Name: Jenna Deacon
Location: East Midlands
jenbob has raised £400.00 for Action Duchenne
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About jenbob
What I'm up to...
My name's Jenna Deacon and on 24th April 2010 a little boy (Alex) where I work at Rothley Park Kindergarten was diagnosed with Duchenne Muscular Dystrophy at age 4. We have known Alex since he was 1 years old and is a lovely little boy full of energy!
As you can image this has come as a complete shock to Alex parents as well as their friends and family and all at the Kindergarten.
What this means in a nutshell is that Alex will be in a wheelchair from age 19-15 and will be unable to move by 20. He is unlikely to see past his 30's. HOWEVER with medical science they are on the verge of finding a cure they just need money and time to bring this to market and that's why we need your help.
On 2nd October I will be taking to the skies to raise much needed funds and help find a cure for Alex.
About muscle disease
Muscle diseases cause muscles to waste and weaken making it hard for those affected to do even the simplest of tasks. The conditions don't just affect the muscles in the arms and legs but the heart and respiratory muscles too. It is a life limiting disease. There are no cures at present. Duchenne is a genetic condition that affects mainly boys. Boys with Duchenne are only likely to live shortly beyond their 20's, which is why we need to find a cure and fast!!
Action Duchenne was established to find a cure or more effective medicines to treat Duchenne Muscular Dystrophy. Since 2001 they have funded key research projects and supported clinical trials that are making real progress towards our key aim.
Their Medicines for Duchenne programme is now producing real results in terms of clinical trialling new drugs to treat Duchenne Muscular Dystrophy.
Let's get right behind the 'Stop wasting' campaign right now. We don't have a moment to waste.
Previous Events [1]
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Tandem Sky Dive!!! - 02 October 2010
On 24th April 2010, a little boy (Alex) where I work at Rothley Park Kindergarten was diagnosed ...
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jenbob
12:09, 01 Oct 10
Excited for my skydive have managed to raise the target but have struggled for sponsers. :( every little helps through x
Pauline
11:48, 19 Aug 10
Hi Jen, thank you so much for your amazing support. You are going to have a fabulous time on the skydive, thank you so much for doing all this for the charity.
