karenwalkersmith

Name: Karen Walker Smith is doing a Sky Dive please sponsor me via the events section below!!!! Thank you.

Location: East Midlands

karenwalkersmith has raised £735.00 for Action Duchenne

Please Donate

Upcoming Events [0]

karenwalkersmith has no upcoming events.

About karenwalkersmith

About me

My name is Karen Walker Smith and on 24th April 2010 close friends of ours little boy Alex was diagnosed with Duchenne Muscular Dystrophy at age 4. We have known Alex since he was born and is a lovely little thing.

As you can image this has come as a complete shock to their parents as well as their friends and family.

What this means in a nutshell is that Alex will be in a wheelchair from age 19-15 and will be unable to move by 20. He is unlikely to see past his 30's. HOWEVER with medical science they are on the verge of finding a cure they just need money and time to bring this to market and that's why we need your help.

On 2nd October I will be taking to the skies to raise much needed funds and help find a cure for Alex.

About muscle disease

Muscle diseases cause muscles to waste and weaken making it hard for those affected to do even the simplest of tasks. The conditions don't just affect the muscles in the arms and legs but the heart and respiratory muscles too. It is a life limiting disease. There are no cures at present. Duchenne is a genetic condition that affects mainly boys. Boys with Duchenne are only likely to live shortly beyond their 20's, which is why we need to find a cure and fast!!

Action Duchenne was established to find a cure or more effective medicines to treat Duchenne Muscular Dystrophy. Since 2001 they have funded key research projects and supported clinical trials that are making real progress towards our key aim.

Their Medicines for Duchenne programme is now producing real results in terms of clinical trialling new drugs to treat Duchenne Muscular Dystrophy.

Let's get right behind the 'Stop wasting' campaign right now. We don't have a moment to waste.