making muscle wasting history

Upcoming Events [0]

tmcl01 has no upcoming events.

About tmcl01

Who are the Killowen Fundraising Group?

In the summer of 2005, two young brothers from our small community in Rostrevor were diagnosed with Duchenne Muscular Dystrophy.

The Killowen Fundraising Group was formed shortly after the boy’s diagnosis in 2005 and their main focus is on raising much needed funds to support Professor Steve Wilton University of Australia on a specific type of research called Exon skipping. This research is specific to the needs of the Grant brothers and others around Exon 68.

How funds are being used

The funds raised to date have been forwarded to both the MDEX project at Royal Holloway University, London, and from 2007 via Action Duchenne to Professor Steven Wilton at the University of Western Australia for his research into Exon Skipping, in conjunction with Professor Muntoni from Imperial College, London.
A pioneer of Exon Skipping, Professor Wilton has agreed to target EXON 68 and other mutations not being targeted in London. This work is already under way.

Our group has pledged £40,000 per year to set up and organise this work. Action Duchenne and Professor Kate Bushby, MDEX Consortium will monitor funds and progress of research.

It is our hope that by providing this specific research into Exon 68 the boys and others will be able to enjoy the benefit of any early discoveries in Exon Skipping, which we believe is their right and entitlement.

Previous Events [1]

• Kilbroney Forest 5km family walk and 10km walk/race - 25 April 2011

  KILLOWEN FUNDRAISING GROUP
  MILES FOR MUSCLES
  In aid of Duchenne Muscular Dystrophy

Your Shout [1] - (View All Articles)

• Killowen Fundraising Group Lobby at Stormont
  03:35PM, 27 June 2009 | 0 comments

  Killowen Fundraising Group sent a strong delegation to Stormont on Monday 22nd June to lobby MLAs and the Health Minister. The lobby was organised by Action Duchenne.