making muscle wasting history

Upcoming Events [0]

Pauline has no upcoming events.

About Pauline

A little about me

My name is Pauline Clark (was Brace), I am a former member of the AD staff and a parent myself.
I live in Herefordshire on the border of Wales, with my husband Trevor, my 4 children and "Boris", the guinea pig!
My children are Ryan, Ellie and Lauren (who are all teenagers now) and Joshua, who is 11.
Before having children I worked at a pathology laboratory and enjoyed studying Human Biology. I am now a full time carer and am currently studying for a degree in English and creative writing.
Joshua was diagnosed with Duchenne in 2004 when he was 5 years old.
I am convinced the answer to Duchenne is out there waiting to be found, we may already be on the way to new treatments with the trials ongoing right now. Fundraising to help find treatments has helped the whole family feel we are actually DOING something to fight this. How fast we get there, I feel, is actually in our hands. When money is a limiting factor in getting a treatment, we are determined to raise as much as we can, as quickly as we can.
It really is TIME TO STOP WASTING!

And for enjoyment...

I love chatting with friends, reading a good book, trips to the cinema, swimming and walks in the sunshine. My favourite season is spring, favourite colour is blue and favourite food is Chinese, though chocolate is always welcome!
Favourite place has got to be Peppermint Beach, SW Australia.

Hopes

For someone to invent non fattening chocolate which is NOT a laxative, that my former metabolic rate would return along with the pre-children figure I took for granted, and to travel the world with enough cash to enjoy it!
The ultimate hope, and in reality at the top of my wish list is that we get treatments for Duchenne for all affected; we aim to raise as much as we can to achieve this and dont intend on stopping until this hope is realised.

Previous Events [11]

• Knickers to Duchenne! - 10 December 2010

  We are holding a ladies night at my house, ladies can get themselves something nice, buy some st...

• guess the number of miles4muscles - 25 September 2010

  We are holding a day in Maylord Orchards Shopping Centre in Hereford inviting volunteers and mem...

• Birthday! - 25 March 2010

  Another year older? I'm choosing not to this year, and am donating my birthday!
  I hope doi...

• Dinner & Dance - 20 March 2010

  Saturday 20th March 7.00pm – Late
  ~ Live entertainment by Blue Moon ~
  ~ Raffle & Auc...

• Racenight and supper - 19 September 2009

  The results of the race night can be found on my "Your shout" page here.
  http://www.actiond...

• Race 1- Fitz Family Chase - 19 September 2009

  This race is sponsored and all horses have owners, please try another!
  
  many thanks to...

• Skydive from 10,000 feet - 05 July 2009

  Please, scroll down to donate!
  On Fathers day, several mad crazy people (listed below) t...

• Lobby at Westminster - 16 June 2009

  Josh and I went to the lobby at Westminster to add our voices to the Action Duchenne lobby deman...

• Lobby of Welsh Assembly - 10 June 2009

  As advocate for the region I organised the lobby of Welsh Assembly, working with AM Christine Ch...

• Toddle waddle & teddy bear picnic - 24 May 2009

  On 24th May, Joshua and his sisters did a sponsored walk in Hereford. They were joined by other...

• Heaven and Hell bar crawl with Katie Magness and crew! Carmarthen - 24 May 2009

  Katie Magness, friends and family crawled the bars of Carmarthen dressed as angels and demons te...

Your Shout [3] - (View All Articles)

• Tears and laughter this week
  02:05PM, 09 December 2010 | 2 comments

  All aboard the rollercoaster that is Duchenne

• Every little helps?
  06:41PM, 17 September 2010 | 0 comments

  Money may be tight for many of us, but sometimes giving a little time really can make a huge difference

• online art auction
  01:47PM, 10 June 2010 | 2 comments

  Some fabulous work open for bids right now