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Pauline hopes this is the year we have all been striving for!
Name: Pauline
Location: West Midlands
Pauline has raised £3,910.00 for Action Duchenne
Upcoming Events [2]
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Dinner & Dance - 20 March 2010
Saturday 20th March 7.00pm – Late
~ Live entertainment by Blue Moon ~
~ Raffle & Auc... -
Birthday! - 25 March 2010
Another year older? I'm choosing not to this year, and am donating my birthday!
I hope doi...
About Pauline
A little about me
My name is Pauline Brace and I am really pleased to work as an Action Duchenne Regional Development Officer covering Midlands and Wales, a role I took on in December 2008.
I live in Herefordshire on the border of Wales, with my partner Trevor, my 4 children and "Boris", the guinea pig!
My children are Ryan, Ellie and Lauren (who are all teenagers now) and Joshua, who is 10.
Before having children I worked at a pathology laboratory and enjoyed studying Human Biology.
Joshua was diagnosed with Duchenne in 2004 when he was 5 years old.
I am convinced the answer to Duchenne is out there waiting to be found, we may already be on the way to new treatments with the trials ongoing right now. Fundraising to help find treatments has helped the whole family feel we are actually DOING something to fight this. How fast we get there, I feel, is actually in our hands. When money is a limiting factor in getting a treatment, we are determined to raise as much as we can, as quickly as we can.
It really is TIME TO STOP WASTING!
And for enjoyment...
I love chatting with friends, reading a good book, trips to the cinema, swimming and walks in the sunshine. My favourite season is spring, favourite colour is blue and favourite food is Chinese, though chocolate is always welcome!
Favourite place has got to be Peppermint Beach, SW Australia.
Hopes
For someone to invent non fattening chocolate which is NOT a laxative, that my former metabolic rate would return along with the pre-children figure I took for granted, and to travel the world with enough cash to enjoy it!
The ultimate hope, and in reality at the top of my wish list is that we get treatments for Duchenne for all affected; we aim to raise as much as we can to achieve this and dont intend on stopping until this hope is realised.
Previous Events [7]
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Racenight and supper - 19 September 2009
The results of the race night can be found on my "Your shout" page here.
http://www.actiond... -
Race 1- Fitz Family Chase - 19 September 2009
This race is sponsored and all horses have owners, please try another!
many thanks to... -
Skydive from 10,000 feet - 05 July 2009
Please, scroll down to donate!
On Fathers day, several mad crazy people (listed below) t... -
Lobby at Westminster - 16 June 2009
Josh and I went to the lobby at Westminster to add our voices to the Action Duchenne lobby deman...
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Lobby of Welsh Assembly - 10 June 2009
As advocate for the region I organised the lobby of Welsh Assembly, working with AM Christine Ch...
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Toddle waddle & teddy bear picnic - 24 May 2009
On 24th May, Joshua and his sisters did a sponsored walk in Hereford. They were joined by other...
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Heaven and Hell bar crawl with Katie Magness and crew! Carmarthen - 24 May 2009
Katie Magness, friends and family crawled the bars of Carmarthen dressed as angels and demons te...
Your Shout [3] - (View All Articles)
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BBC radio Hereford & Worcester
05:50PM, 25 September 2009 | 0 commentsSome great coverage locally today, you can listen again!
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Race Night Winners!
07:34PM, 23 September 2009 | 0 commentsA great night, and here are the lucky winners!
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tough day
08:02PM, 13 July 2009 | 0 commentswhen we think we have gotten our heads around whats happening....
Friends (93)
Photo Roll (8)
Wall (23)
belinda
09:04, 09 Aug 09
hi pauline i hope you are all doing well.... sorry about saturday we was on our way but had a problem with the car tyre.I have had some good news about the house that is being built just round the corner from us .A lady phone'd us up while shopping to let us know that we have got the house...so we should be in by next april...... which do you think would be best carpet or woodden flooring thanks belinda x x
juliaascott
10:15, 05 Aug 09
well thats a fantastic total Pauline, well done.
I am up to £180 sponsorship in only 2 days of asking so i'm pleased, especially considering i've got 7 months to raise my target!
AndreaAnderson
09:01, 04 Aug 09
Hi Pauline - Congratulations on a successful (injury free) jump! I plan to do one next year in aid of Duchennes and you've given me a confidence boost.
juliaascott
10:34, 01 Aug 09
meant to ask how did today go with the rain and all, and what was the combined total from the jumps?
belinda
06:17, 12 Jul 09
hi pauline chris loved the jump that much he is on about joining the jumping club there.
belinda
11:29, 09 Jul 09
well done pauline on doing the jump picture look great
see you soon belinda
iangriff
04:20, 07 Jul 09
Great vid n pics from your jump! well done. Thank you for the lovely comments about my book :D. Take care. Love Ian x
sarahlou
09:57, 05 Jul 09
Hi Pauline, just thought id let you know iv finally up-dated my profile, added photos and registered an event! I dont know Matt but realise he is also doin the Robin hood so have contacted him! Thanks for all of your help x x
Matt1988
12:55, 29 Jun 09
Hi Pauline. Thank you for your kind comment. I'm thrilled that we have a good number of people going in the Robin Hood Half Marathon/Marathon; Nottingham says it's time to stop wasting!
Good luck with your sky dive, you're very brave, probably wouldn't catch me doing that. It's also funny that you mention theme park rides because I'm phobic about ones that go upside down; you're not alone! lol.
I would also like to congratulate you on all the previous work you've done for Action Duchenne, fantastic amount of money raised!
Take care sweet heart.
michelle-harris
05:27, 21 May 09
Seen the picture in the paper. Am very scared now it is getting closer!
iangriff
07:15, 10 May 09
Thanks for the posts on my wall :D I got some more info for the duchennepedia.
