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On Fathers day, several mad crazy people (listed below) threw themselves from a perfectly good plane in their quest for a treatment for Duchenne. Being one of those mad crazy people, I have to say that I was terrified!
But Im far more scared of what lies ahead for my little boy, and all those others affected by the devastating muscle wasting condition Duchenne muscular dystrophy. So please please support us and help us find a cure for this cruel condition. 2 babies every week are born with Duchenne in the UK, lets change what that diagnosis means by supporting Action Duchenne who fund research projects for treatments. Currently there are 2 drugs on trial in the UK, help us continue to fund such research, the answers to this condition are out there waiting to be found. Time is not on our side, we hope that YOU are.
The mad and crazy taking part and jumping with me are:
Professor Steve Wilton, Perth, SW Australia. Leading figure in the current exon skipping drugs trial for a treatment for Duchenne (ongoing here in the UK) , member of the Mdex Consortium. Hero to many!
Amanda Burt, vets receptionist, friend to parents who have a son with Duchenne.
Michelle, Vet, Amandas work colleague
Melanie Williams, teachers 3 teenagers who have a younger brother with Duchenne
Joe Plant, a young man with a big heart, who read about us in the local paper and decided to support us by jumping too!
Tracy Comley, aunty to cute Jake, who sadly also has Duchenne.
Chris, friend to Eddy and Belinda Kelly, who also have a son with Duchenne.
Thanks for your support, please do copy and paste the url to this page and spread it to all your contacts.
UPDATE: Fathers day: cloud held us back, eventually 5 of us got to jump, but Amanda, Chris and myself have re-booked for 2 weeks time. Steve Wilton was one of the first to jump and had a bad landing, resulting in a badly broken ankle, possibly also leg, and dislocation at the ankle, he has surgery tomorrow. How bad do I feel????? He insisted on photos of the ankle and is asking for more sponsorship !!!! He is on morphine mind.... his page is here http://www.actionduchenne.org/stopwasting/Steve-Wilton/event/144/skydive-accident
Now I am more scared than ever, its really shocked me. But a huge well done to Melanie Williams, Tracy Comley, Michelle Harris and Joe Plant who did a very brave jump today for us!
Photos to follow!
Sunday 5th July, Chris came across yesterday with the Kelly family to do his jump, way to go Chris!! Then we were given the all clear for sunday to come over and jump.
WOW, it was terrifying but fabulous, I was so scared but the instrctor was fab, and I smiled from the moment we left the plane.... and it was the most magical awesome experience ever.
I really want to do it again!
£50.00
iangriff on May 09, 2009Good Luck Pauline from the Griffiths
£875.00
Offline DonationsThis is the money raised for the event outside of the website
£10.00
Wendy on May 20, 2009Good Luck - you're a star
£10.00
Lorraine on May 22, 2009Good Luck Dougal,reach for the stars and enjoy! Love Boo,Nath & Harry
£50.00
Tony & Ruth on May 26, 2009Well done and good luck.
£10.00
superflip on May 27, 2009£20.00
Emstu on May 28, 2009Good luck to all those jumping!
£20.00
Dave Kim and Megan on May 29, 2009good luck from the Maurices
£20.00
Liz & Div Cumming on May 30, 2009You are one amazing lady Pauline.
£10.00
John Burke on June 04, 2009Go or it Pauline, It will be my turn next.
£10.00
Dave Raybould on June 04, 2009£20.00
Davina, Ags & Sophia on June 05, 2009Go for it!
£10.00
Juliette King on June 05, 2009Best of luck and have fun!
£50.00
cazz on June 05, 2009for Lisa and Seth xxx
£10.00
Easty on June 06, 2009For Lisa, John & Seth
£10.00
Eve, Rhys & Annabel on June 06, 2009For Lisa & Seth, hope this goes a little way to help x.
£10.00
Sissy H on June 06, 2009£10.00
Yeoman trio on June 07, 2009Good luck for the skydive! And for Lisa, John and Seth with all our love xxx
£2.00
Sarah and Harry on June 07, 2009For little Seth, the boy with the bestest hair in the world xxxxx
£5.00
Natalie on June 08, 2009Good Luck Pauline
£5.00
Sian, Eva and George on June 08, 2009For Lisa and Seth xxx
£10.00
kateandalex on June 09, 2009This one's for john, lisa and the gorgeous seth
£10.00
Jo Corrigan on June 11, 2009£50.00
Houston on June 11, 2009Don't forget to pull the dangly thing...
£50.00
Phil and Kitty on June 12, 2009Good effort, from Singapore
£200.00
EP AUSTRALIA on June 12, 2009From Mark & Skull in Perth, Western Australia. Good luck and enjoy the jump...
£50.00
Denise on June 12, 2009All the best for the jump!!! from Singapore...
£20.00
IanRP on June 12, 2009Good luck Pauline. This one is for Lisa, JB and Seth x x x x
£20.00
Dean on June 12, 2009Go for it Doog! Good on you and I bet you will want to do it again when it's done!
£20.00
Mary on June 14, 2009Good luck!
£10.00
Melanie on June 15, 2009Good luck Pauline. My fingers are crossed for you.xxxxx
£150.00
Carole & Keith on June 15, 2009Good luck Pauline. From Seth's Granny & Grandad, family & friends
£20.00
Cal from MD Forum on June 15, 2009Good luck Pauline - you're doing it for a fantastic cause :)
£20.00
Lesley on June 15, 2009Pauline - you have more bottle than me!
£20.00
Jack in Shanghai on June 16, 2009I wish you the best of luck and am glad I could help out even a little in your great cause. All the best from China!
£10.00
esther on June 19, 2009Good Luck - Will be thinking of you! x
£10.00
Sarah Godber on June 19, 2009Good luck will be thinking of you!
£10.00
Carl "Action" Tilson on June 20, 2009Reach for the stars above... All the best!
£50.00
The Whites on June 20, 2009Lots of love from Rachel, Bob, Elanor, Max and Grace
£10.00
the hogan on June 23, 2009£15.00
Jones's Levenshulme on June 23, 2009thank you
£5.00
Jannette on July 04, 2009Go for it Pauline - I hope you get to fly this weekend!
£10.00
Emma Jerred on July 06, 2009Well done!!! Am so proud of you.
£10.00
susi-q on July 14, 2009Well done you MAD fool.xx
£50.00
Lizzie & family on January 11, 2010Thanks Lizzie, I put it on for you using my card, its very kind of you and much appreciated hun! xxx