making muscle wasting history

All Party Group of MLAs at Stormont

• 12:55AM, 04 May 2012
• 2 comments
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We had our third meeting at Stormont last week and now await the full report to be published on 3rd July. Let's hope this will finally give boys in NI the standards of care they deserve.

All Party Parliamentary Group Stormont 2012

• 11:09PM, 18 February 2012
• 3 comments
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Great news. An All Party Group of MLAs are working to produce a Reoprt in June 2012 based on research they are conducting into the standards of care here in Northern Ireland.

Andrew's first visit to the annual conference 2010

• 09:25PM, 17 November 2010
• 1 comments
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Andrew, aged 12, attended his first annual Action Duchenne conference 2010 and learned a huge amount about DMD