making muscle wasting history

Upcoming Events [0]

Johnburke has no upcoming events.

About Johnburke

Music

Prodigy,
New Model Army,
The Cure,
Sisters of Mercy,
Queens of the Stone Age,
Bloc Party,
Lost Prophets,
Pop Will Eat Itself,
The Enemy.

Interests

My Son,
Rugby,
Playing the drums, (Badly).
Growing undersized veg.

About Me.

I am married to Lisa and have a baby son, Seth. We also have three cats.
Seth was diagnosed at six week old and comfirmed two weeks later. Not because of any problem. But because Wales has an new born screening programme for boys. (Good how I wish I had never signed that piece of paper!)
Right now Seth is a happy, strong and healthy baby.
To earn a crust I dress up as a nurse and spend time in ITU.

Previous Events [2]

• Tarka Trail Cycle Ride - 18 June 2011

  John and Seth along with other members of his family and friends are cycling along the beautiful...

• Welsh Assembly Loby. - 10 June 2009

  I will be taking my son, Seth, to the Welsh Assembly to make sure my voice is heard.
  Join u...

Your Shout [3] - (View All Articles)

• Welsh Assembly Neuromuscular Update 10/02/2011.
  08:21AM, 10 February 2011 | 1 comments

  A review of the work done since the publication of the Thomas Report.

• Questions to Welsh Assembly Minister for Health
  00:05AM, 15 November 2010 | 0 comments

  Qusetions to the Welsh Assembly Minister for Health from Dr Dai Lloyd AM. Chair od the All Party Group on Neuromuscular Conditions

• Duchenne map of medicine link
  09:09AM, 16 September 2010 | 0 comments

  Follow this link to the NHS Map of Medicine page for Duchenne and Becker muscular dystrophy.