making muscle wasting history

Upcoming Events [0]

Johnburke has no upcoming events.

About Johnburke

Music

Prodigy,
New Model Army,
The Cure,
Sisters of Mercy,
Queens of the Stone Age,
Bloc Party,
Lost Prophets,
Pop Will Eat Itself,
The Enemy.

Interests

My Son,
Rugby,
Playing the drums, (Badly).
Growing undersized veg.

About Me.

I am married to Lisa and have a baby son, Seth. We also have three cats.
Seth was diagnosed at six week old and comfirmed two weeks later. Not because of any problem. But because Wales has an new born screening programme for boys. (Good how I wish I had never signed that piece of paper!)
Right now Seth is a happy, strong and healthy baby.
To earn a crust I dress up as a nurse and spend time in ITU.

Previous Events [1]

• Welsh Assembly Loby. - 10 June 2009

  I will be taking my son, Seth, to the Welsh Assembly to make sure my voice is heard.
  Join u...

Your Shout [3] - (View All Articles)

• The Action Duchenne Charity Maiden Hurdle.
  09:43PM, 17 July 2010 | 0 comments

  Fancy a punt ?

• The Thomas Report: Access to Specialist Neuromuscular Care in Wales.
  09:38PM, 14 July 2010 | 0 comments

  Launch of the Welsh Assembly Government Cross Party Group Report on Access to Specialist Neuromuscular Care in Wales.
  
  http://www.muscular-dystrophy.org/assets/0001/7692/Thomas_Report.pdf
  
  

• Action Duchenne Lobby 2010
  10:16AM, 19 June 2010 | 1 comments

  A good day in London.
  A march through Westminster. Petitions handed into Number 10 Downing St, Health Ministry and Dept Transport.
  A lobby of MPs at Westminster.
  Followed by a meeting at Central Hall.