I was offered a position on a care package with some one who had D.M.D , I looked it up on the internet as I had never herd of the condition before, As I started to read I realised the enormity of my new job!! if I was to accept that is , I went for an induction and my heart was heavy when I met him, the more I worked with him the more I understood I feel it is very different ready about the difficulties and helping some one overcome the difficulties!!! that they face I went on the lobby 2009 and I am not ashamed to admit it I cried a good 50% of the way round !! I find it hard to believe that as a nation we are letting people suffer and ultimately die and for what ?? we are a 1st world country I was also over whelmed by the amount of courage that I was stood in amongst so there that’s how I got in involved in action Duchene, As previously stated I am organising a bungee jump as well to try and help the cause !!!
