making muscle wasting history

Upcoming Events [0]

natalieroberts has no upcoming events.

About natalieroberts

Movies

love girly films and also disney films, watching them with my children

Music

all types of music

Interests

walking, caravanning, holidays, spending time with my special, wonderful family

Our Story

my name is Natalie and i am married to Johnathan. We have four children, Jordan 13, Alfie 5, Thomas 2 and our new addition Isabella 4 months. Thomas was diagnosed in November 2009 and we are still coming to terms with this devastating news. With having 2 boys before Thomas, i always knew something was not quite right and he developed a lot slower than the others. Thomas constantly falls and has never become steady on his feet. We decided to get him checked after going on holiday in August last year when he lost his balance a number of times resulting in hurting his head quite badly. From being checked over by a peadiatric doctor and doing blood tests in October consequently being diagnosed our lives have become a nightmare and i will never forget the doctors words as he tried to explain this devastating illness and how there was no cure for my beautiful, kind, gentle and loving baby boy. We have since been referred to Manchester under the care of a "specialist doctor" who has told us "there will be no cure in the next ten years" and also to "not rely on the clinical trials" basically taking away any shred of hope we had. We have since found out about Action Duchenne and have become more positive about our sons future and we are aiming to raise money and do all we can to help our son and other boys affected with DMD.

Previous Events [1]

• 10k run pennington flash - 03 April 2011

  my husband and family are doing a 10k run around pennington flash to raise money for action duch...

Your Shout [0]

natalieroberts has no articles.