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Hi guys! Thank you for following the link to this site, hopefully you'll sponsor me! ;-p
If not then at least look around the site and become more aware of this rare condition that effects boys and in rare cases girls. Hopefully we can raise awareness and in turn funds for this worthwhile cause which, with more research, can hopefully be cured.
Regards
Simon
£20.00
Offline DonationsThis is the money raised for the event outside of the website