making muscle wasting history

Upcoming Events [0]

AlanStewart has no upcoming events.

About AlanStewart

Movies

Star Wars, Gladiator, The Godfather Trilogy, The Matrix Trilogy, X-Men, Scarface, Apocalypse Now, Indiana Jones, Alien, The Sting, Jaws, Young Guns, Serpico, Kill Bill, Die Hard, King Kong (1933), Pulp Fiction...

...and whatever Ben is watching (usually Monsters Inc.)

Music

The Jam, The Who, Paul Weller, Oasis, The Stone Roses, Ocean Colour Scene, Happy Mondays, The Beatles, The Rolling Stones, Elvis Costello, David Bowie, U2, Kings of Leon, Duffy...

Interests

Football (Aberdeen FC), Watching Football, Playing Football... (You get the idea!)

Golf, F1, Movies (Spending too much money on DVDs)...

About Me

Hi, My name is Alan. I am 30 years old and live in Livingston, Scotland.

I am married to Sharon (SharonS) and we have two children, Benjamin (3) and Phoebe (1).

Benjamin Leighton Stewart

Our Son Ben was born 8th August 2005... It was without doubt, THE happiest day of my life.

All I have ever wanted was a little boy... In many ways I still consider myself to be one... I have never really grown up and I never want to!

His smile is the most amazing thing that I have ever seen, and a day never goes past without realising how wonderful it was to be Ben's Dad.

Our Daughter Phoebe was born in January 2008 and our family was complete... things quite simply couldn't get any better...

...but on 6th March 2008 my heart was shattered...and it can never be repaired.

...Life since Ben's diagnosis

The weeks and months that followed Ben's diagnosis were the darkest days of my life. I never want to experience anything like it again.

Sharon and I cried uncontrollably, day and night, feeling (and being) physically sick…

We were grieving for our Son… all of this whilst he played happily in front of us.

It was over a month before I felt like I could return to work. Even then it was unbearable… people were tiptoeing around me, walking on eggshells.

I try my best, but I will never be the man I was before... I feel broken...

But life goes on. Every day brings new challenges, and new delights.

Ben's development in terms of his communication has come on leaps and bounds over the last year. Primarily due to the most fantastic care and assistance that he receives at nursery (within a special needs school). His little face lights up every time that we communicate verbally... It's a joy to see.

Previous Events [4]

• Action Rocks! - 12 September 2009

  A close friend of mine (Colin Baxter) is organising a charity concert in aid of ACTION DUCHENNE....

• Climb A Ben For Duchenne - 27 June 2009

  UNFORTUNATELY OUR CLIMB HAD TO BE CANCELLED DUE TO A LACK OF SUPPORT... FROM THOSE SUPPOSED TO B...

• Lobby of Scottish Parliament - 03 June 2009

  My Wife Sharon, our Son Ben and I will be joining Dean Widd and Action Duchenne for the 3rd Annu...

• Edinburgh Race Night - 03 April 2009

  Edinburgh Race Night
  
  A Charity Race Night in aid of Action Duchenne was held on 3rd A...

Your Shout [1] - (View All Articles)

• ACTION ROCKS! ...in aid of Action Duchenne
  01:37PM, 04 August 2009 | 1 comments

  A close friend of mine (Colin Baxter) is organising a charity concert in aid of ACTION DUCHENNE.
  
  Howden Park Centre Auditorium, Livingston on Saturday 12th September 2009 at 8.00pm (Doors open at 7.00pm)
  
  Tickets are available from the Box Office now... £7.50