making muscle wasting history

Newborn screening for DMD in Wales stopped

• 08:28PM, 04 November 2011
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The Welsh Government in their wisdom has decided to stop the screening newborns for DMD.

No more sleep Studies in Wales

• 09:01PM, 22 June 2009
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Live in Cardiff, son Ross has DMD and is 15yrs old. Found out that when respiratory consultant leaves next month there will be no sleep studies done in Wales. We will have to travel to Great Ormond Street or Glasgow!! to have it done.